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THE PATH TO RC

6 years 9 months ago #53711 by Jack R
Replied by Jack R on topic THE PATH TO RC
Lotech,

(Soon to be Hitech),

Sounds like the waiting is almost over. There can't be a whole lot more hoops for you to jump through. We want to hear how well the recovery and adjustment to new normal is going.

Seriously wishing you and yours the best.

Best,
Jack
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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6 years 9 months ago - 6 years 9 months ago #53710 by Alan
Replied by Alan on topic THE PATH TO RC
LoTech,

In another thread I indicated you are my new hero (inspiration)! I will look forward to your post op reports learning from you as you are helping others!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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6 years 9 months ago #53709 by sara.anne
Replied by sara.anne on topic THE PATH TO RC
Of course you are scared. But you aren't giving up. That is more than half the battle
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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6 years 9 months ago #53708 by lotech35
Replied by lotech35 on topic THE PATH TO RC
sara.anne

I'm scared, it would be foolish not to be, but I wont just roll over and have a pity party, I will approach this like I do everything else and do my best. Its all any one can ask!
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.

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6 years 9 months ago #53707 by sara.anne
Replied by sara.anne on topic THE PATH TO RC
Still keeping really good thoughts for you! I am so impressed with how you are dealing with this.....you are a real hero and an inspiration!

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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6 years 9 months ago #53704 by lotech35
Replied by lotech35 on topic THE PATH TO RC
Had a colonoscopy yesterday, one small polyp found, Doc wasn't alarmned about it, waiting for pathology report.
Today went to see ostonomy nurse, She had a fantastic atittude made me feel better about procedure. showed me the appliances and marked my belly for stoma locations 2 locations. they are covered in plastic and will be used by Doctor performing my surgery. I will get a stoma either way for bag or j pouche. the stoma looks odd but I'm told I'll get used to it. Well presurgery screening tomorrow, getting close to D day!!!
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.
The following user(s) said Thank You: Jack R

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