Help with place to go

7 years 10 months ago #51215 by Jfoutz
Replied by Jfoutz on topic Help with place to go
Thank you Sara Anne..I am going in the morning for a turbt locally..then on to UTSW for a consult next Tuesday..was getting impatient since I've been waiting for 6 weeks to get all tests done so I knew what I was dealing with so decided to get the biopsy done here..sure hope I made the right decision.

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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7 years 10 months ago #51214 by sara.anne
Replied by sara.anne on topic Help with place to go
Unlike many of us, you are fortunate to have at least three superb place for a consultation. I would take whichever is most convenient for you, since you will no doubt be spending a lot of time there.

As for the waiting time, of course, sooner is better. But whatever you have has been growing there for years and a few weeks to find the absolutely best place for treatment is well worth it.

Wishing you all the best

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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7 years 10 months ago #51213 by Jfoutz
Help with place to go was created by Jfoutz
I have an appointment scheduled at UT Southwestern Medical in Dallas, but waiting to get an appointment at MD Anderson, also Mayo Clinic in Phoenix can also see me soon. CT scan shows probable T3, but no biopsy staging yet. It's been 6 weeks since symptoms started and feel like I need to get something fast. If anyone has any ideas on which place would be the best, please respond. I'm very confused on ratings and doctors.

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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Moderators: Cynthiaeddieksara.anne