Thank you for moving the question to the correct place in the forum. I haven't used a forum before either.
I already went to Dana Farber here in Boston for a second opinion. They pretty much concurred with my physician at Lahey, and offered same option...radical cystectomy. They did offer a clinical trial with a Chemo/Radiation treatment, typically used for those that are not candidates for surgery, but in this case for those that want to try and preserve their bladder. I happen to be a Liver transplant patient as well (2007) and everything is working great in that department, so I opted not to do the clinical trial as it can be hard on the liver...
My Physician, Dr. Sorcini at Lahey has done 'hundreds' of neobladders, learning the technique in Europe many years ago...so I have great confidence in him.
Still, I'm reading here that it may take a year to get comfortable with a neobladder? complication requiring self catheterization several times a day? yiikes.
The Cleveland Clinic Synopsis is great. I have seen it before. I believe that Dr Sorcini said that they do not do the Indiana pouch. So, only two options here.
michael