The tumor in my bladder was blocking my left ureter and caused damage to my left kidney, function is down to 30%. The Dr. said he doesn't recommend a Neobladder since I had partial Renal failure on the left kidney. He says the IC w/ bag is the best way to void urine and protect the kidneys.
Is it uncomfortable or painful when using a cathetar to void the neo bladder? I know I wasn't a big fan of the feeling when they used the cyctoscope.
Wow! I thought I was young when I was diagnosed at 53.
But You are where you are, and we just push on.
I am surprised by the lack of Neo discussion by your Dr.
I won't even try to disagree as I have no direct knowledge. But i have a neo and it works great. Other than an incontinence issue at night, I am happy with the results. The surgery is longer and more complicated so that may be why. But I have had no real problems with the situation.
I wish you the best of luck with whatever choice you make and my sincere hope of a full survivor status for you.
Best of luck
Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.
08/08/08...RC neo bladder
New Man! [/size]
Heck, I can't take credit. Seems like someone several years ago posted it and I bookmarked. I have kept a pretty sizable library of subjects but, this one is certainly a valuable one for or fellow BC warriors.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
So sorry to hear. I have not had to have bladder removal, but know lots who have. 41 seems young to have only an IC recommended! It is, however, the simplest surgery. There may be a medical reason that this is recommended, or it may be the only one that the surgeon is really comfortable with.
Whichever diversion YOU choose should be done by a surgeon who does MANY
MANY MANY of them and you should ask your surgeon this question. There is also a third choice that many find a good solution, the Indiana pouch.
NOW is the time to find a really good place for this surgery to be done, and a surgeon who is willing to work with you on whatever diversion YOU choose. Yes, I understand that a neo can be a bit of a pain to "train" but many people are successful with it and those who aren't are able to adapt.
This is an important decision, so take your time and do your research,
Wishing you all the best
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society