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4 years 9 months ago #50177 by CatherineH
Hello Celeste... I'm very sorry to read about your husband's diagnosis. Are you going to the VA Hospital near Vanderbilt in Nashville? If so, they have access to some very good doctors and surgeons.

I am a patient of Vanderbilt Medical Center, next to a VA Hosp. I'm fairly certain my urologist also does quite a lot of surgeries at the VA next door. Dr. Clark is an excellent surgeon. I hope he can get the best of care that he deserves.

Best wishes... Catherine
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TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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4 years 9 months ago #50176 by Pat/Celeste
Been reading(This is Celeste his wife) He has VA. We were able to get his chemo treatments moved closer to home to a oncology center. With no other insurance we are not able to shop around. We are thankful that we will not have to drive over 6 hours a trip for his treatments. His surgery will be in Nashville. At this time plans are for removal of bladder, prostate, urethra, and lymph nodes. He will have a stoma with bag

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4 years 9 months ago #50173 by GKLINE
I do hope you have read some of the other posts on this site.
It is so important to have a Dr and hospital that specializes in Bladder cancer.
If you are at one of these facilities... good luck
If not ... please find one

george

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]
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4 years 9 months ago #50169 by Pat/Celeste
Blood in urine starting in March, just every once in awhile that I could see. August I started burning when I peed. Went to doctor, got treated for UTI several times but the bleeding was bad and it always feels like razor blades.

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4 years 9 months ago #50161 by sara.anne
So sorry to hear this!

What kind of symptoms did you have before the diagnosis?

Wishing you all the best as you go through your treatment.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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4 years 9 months ago #50160 by Pat/Celeste
Diagnosed 11/20/2015 with Aggressive high grade T4a bladder cancer. CT scan did not show anything. Tumor completely filled my bladder. Doc had to open my ureters in my bladder so my kidneys could drain. My urethra has been invaded by the cancer and my prostate. Now I have several swollen lymph nodes that are causing my whole leg to be swollen (peripheral lymphedema). Chemo starts Tuesday. It hurts so much.
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