PLK,
I haven't been on the website in a while, but saw this topic and thought my response could be helpful. Cynthia's information was invaluable as I was trying to make up my mind regarding the diversion options.
I ended up going with the Indiana Pouch and am so thankful I did. Following the surgery, I had to carry my urine around in an external bag for a few weeks and absolutely hated it. I love that if I didn't tell you, you would have no idea that I pee out of my belly button. I can wear most of my old clothes (except the ones that were too big after losing 20 lbs and those that rub right on my stoma), and other than my scar from surgery, someone could look at my abdomen and not even notice that I have a stoma in my belly button. Cathing is easy to do and becomes easier all the time. At first, I would sit to cath, but now I'm comfortable standing up and I'm getting it done faster than before.
There are a few downsides to having a pouch, but they don't outweigh the positives. I had my surgery in NYC, but live in Western NY. Doctors around here don't have much experience with Indiana Pouches. This has been a problem. My urologist here told me that he does two IP to every eight Illeal Conduits. When I was hospitalized with a fever recently, (not at the hospital my urologist works out of - but the hospital at which I was receiving chemo) I learned how little is understood. Some pretty scary errors were made in my care. I've since decided that my connection to my physicians in NYC are going to have to be my main resource despite the long travel to get there.
Occasionally, I leak from my stoma, but only when my pouch is too full. This mostly occurs at night when I don't wake up on my own to cath. (I'm past the point of setting my alarm.) I sleep with a rubber bed protector under my bottom sheet that I bought at Target in the baby section. This only happens about once every two weeks.
I wish you well with your decision. It's a tough one, but hopefully, as you research more the diversion that fits your needs will become apparent.
Good luck!!!!
Lelly