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6 years 4 months ago #46379 by GKLINE
If the biopsy of the tumor shows cancer and the bladder has to be removed, the prostate will be removed too. Since the prostate gland is the semen producer, there will be no semen. He cannot have children.
But he can have sex with a nerve sparing bladder removal. It will take some time to get the function back,but a skilled surgeon will perform this procedure.

Do not despair too much. He needs you to lean on. Talk.... A lot. And realize that you lives may change but you will find that this challenge can make your relationship even stronger if you work as a team.

Good luck. Come back anytime


Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
New Man! [/size]

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6 years 4 months ago - 6 years 4 months ago #46336 by Alan
A biopsy is needed to send a sample to the pathologist to see if in fact it is cancer. As in most tumors, a second surgery is often done (especially in bladder cancer-called a TURB) to be sure of the grade and margins are taken to be sure it hasn't progressed further than the first biopsy showed.

Northwestern indeed has an excellent reputation although I know nothing about Dr. Koslowski. It does sound HudsonGirl has given you a good ref.

On having kids. I am on shaky ground as I haven't had my bladder out but, that is something to discuss with your URO. I don't see why you couldn't have kids however. Usually the prostate goes out with the bladder but, there is "nerve sparing surgery" to keep a males parts in working order while some take time to function/erection. Also, as the sperm is made in the testicles I see no reason why you couldn't have kids-even of you needed to freeze some. There are several guys that can give you more info as they have had a cystectomy done and hopefully they will chime in.

Keep asking questions as someone will have gone through in a similar fashion. Lot's of success stories here.

Also, if the tests do concur as bladder cancer, if it hasn't invaded the muscle part there are other treatments like BCG (see this site and others for info). It is no fun waiting but, take each day and step one at a time.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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6 years 4 months ago - 6 years 4 months ago #46335 by Hudsongrl
Does the first uro see multiple tumors on cystoscopy or CT scan? Usually bladder tumors are malignant, though it is possible they can be benign. The only way to be sure is to biopsy. Dr. kozlowski did not do a biopsy first, because he was 99% sure my hubbys tumor was cancer. We scheduled a TURBT. Tumor was removed followed by a mitomycin wash to destroy any lingering cancer cells. Hubby was only in hospital overnight.
I am curious why first uro is telling you that hubbys bladder needs to be removed without biopsy or TURBT? I don't actually know if prostate has to be removed during bladder removal or not. Maybe someone else here will know the answer to that.

If you see Dr. kozlowski, i recommend making a list of questions to ask and taking list to appt. check off as he answers them . I know this is overwhelming in the beginning. I'm sorry you and your husband are going through this. But, the forum here is wonderful. So much information from all these caring folks. I post...and relay info to hubby. Lol

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6 years 4 months ago #46334 by gveretvar
Thank you, it's a huge help!!! A few more questions...Can a doctor say that it is a cancer without biopsy?

If a doctor removes bladder as far as I understand (from internet)it requires to remove prostate. Correct? We want to have a child, would it be possible after the surgery?
Thank you!

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6 years 4 months ago #46332 by Hudsongrl
Hi again, Dr. Kozlowski is a urologist and an oncologist. He is at one of the best hospitals in Chicago...Northwestern. I am not familiar with your other uro, but i would definitely get the second opinion from Dr. Kozlowski. Do not be put off by his dry personality. He is straight and to the point, but a brilliant surgeon and professor there.

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6 years 4 months ago #46330 by Hudsongrl
Hi there, my husband was diagnosed 18 months ago. Dr. kozlowski is our doctor and one of the BEST. He is very very skilled, but doesn't have much bed side manner. He is "the man" for treating bladder cancer...my husband just had his checkup today and got an all clear. Dr. kozlowski was our second opinion. The first uro we saw was not at Northwestern and practiced out of Central Du Page ...and we had zero confidence in him. I cannot say enough about how confidant we feel with Dr. Kozlowski. He did my hubby's surgery december 2012. and all went well. Best of luck to you! I'd be happy to chat anytime:)

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