Re:adenocarcinoma

4 months 2 weeks ago #59986 by ckfun
Replied by ckfun on topic Re:adenocarcinoma
Hello,
The "tumor" team met at Moffitt on Monday to discuss my husband's medical treatment options after the surgery he had a month ago..
The fact that there was a cancerous lymph node in the fatty tissue made a difference in a negative way.
There are many unknowns when dealing with treatments. The adenocrcinoma tumor is found in only 2% of bladder cancer patients vs. a urothelial tumor which is treatable.

Option 1 is watchful waiting with a CT scan every 3 months.
Option 2 is radiation/chemo or immunotherapy...has not proven effective in most cases
Option 3 is a clinical trial using radiation/immunotherapy. Details will be furnished to us if my husband would qualify for the trial. It is being conducted by a group I am not familiar with.

So, not the outcome we had hoped for..but you play the hand you're dealt.
Good luck to all...be safe

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5 months 1 day ago #59918 by Alan
Replied by Alan on topic Re:adenocarcinoma
Sure sounds good to me. One day at a time!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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5 months 1 day ago #59917 by sara.anne
Replied by sara.anne on topic Re:adenocarcinoma
That is good news!,

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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5 months 1 day ago #59916 by ckfun
Replied by ckfun on topic Re:adenocarcinoma
I finally got a call from Moffitt today regarding the pathology report on the tumor and lymph nodes.
The tumor is an adenocarcinoma which we knew from the original biopsy/TRBT
During the partial cystectomy, the surgeon also removed 19 lymph nodes.
The node closest to the bladder was cancerous. The other 18 nodes were negative!
Truly a nice surprise.
There is a weekly meeting every Monday at Moffitt to discuss the patients tumors and treatment options. This includes the surgeon, oncologists etc.
They will discuss my husband's case next Monday.
They will contact us next Tuesday or Wednesday to discuss their consensus.
This is the best outcome we could have hoped for, given the severity of the situation.

Be well and safe...enjoy life.
~carol

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5 months 4 days ago #59896 by ckfun
Replied by ckfun on topic Re:adenocarcinoma
Sorry about the post resembling a rant.
My biggest concern is the fact that adenocarcinoma bladder tumors do not respond to chemo or radiation.
Assuming that the lymph nodes have also been invaded after a partial cystectomy, time is of the essence for my husband. Critical decisions will have to be made.
I have noted that MD Anderson has a Phase 2 clinical trial for this type of tumor, but results have not been posted on the NIH website.
Good luck to all...
~carol

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5 months 5 days ago - 5 months 4 days ago #59895 by Alan
Replied by Alan on topic Re:adenocarcinoma
Yes, not having the path report by now is SLOW. Getting out of the hospital is a big improvement. Hopefully they can eliminate that clot.

This board for rants, complaints and the occasional good news. You have the right attitude of one day at a time. We are here as listening ears so post anytime.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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