stoma care

13 years 1 month ago #36319 by mamatrausch
Replied by mamatrausch on topic stoma care
thanks melodie and cynthia!
I know i always listen to what the Dr's say and then make the best choice of action based on advise and common sense. This was one of those times it just reconfirmed that my stoma care was fine the way it was. ( he was an infectious disease Dr and you know how they like sterile things) I am looking into a latex allergy. Right now I am trying out silicone caths and NO POUCH PAIN wouldn't that be crazy after all these months of so much inflammation, antibiotics and pain.

T1/G3-CIS 10-01-2010
10-27-2010-Indiana Pouch

Please Log in or Create an account to join the conversation.

13 years 1 month ago #36314 by Cynthia
Replied by Cynthia on topic stoma care
I would agree, like Melodie I use baby wipes. Alcohol..not so much. What I have found when dealing with things related to my diversion is this. That someone may be a world renowned specialist in their own field and know nothing about the care and feeding of your diversion. He may not have realized that you would be using it so many times a day. That may not be the case but I would talk to your Urologist about it. When the flu season was upon us and they said that good old warm water and mild soap worked as well as antibacterial hand jell, you might ask him his opinion.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

Please Log in or Create an account to join the conversation.

13 years 1 month ago #36309 by Melodie
Replied by Melodie on topic stoma care
Julie - you are a real trooper! All of this mess should be behind you by now but isn't, but you will keep working toward full recovery, and I know your perseverance will pay off. I had never considered the idea of surgi-lube possibly carrying bacteria. And if good folks like Pat didn't tell us, when or how would we in the BC community know? Isn't the forum such a wonderful blessing in our lives? Thanks to Cynthia, Pat, and all others who have helped make it the wonderful educational tool it is.

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

Please Log in or Create an account to join the conversation.

13 years 1 month ago #36302 by mamatrausch
Replied by mamatrausch on topic stoma care
Pat thanks for the info I do use surgi lube packets and large tubes
How did you hear about recall? I guess I will have to callthe medical supply co (I used two different ones)

Im looking for a catheter with large eyes that is NOT LATEX
Any ideas I know you use coloplast soft right????
Julie
PS how are you doing???? I was really scared for you. Blood clots are nothing to mess with I had a clot and heart attack at age 42 NO FUN!!!

T1/G3-CIS 10-01-2010
10-27-2010-Indiana Pouch

Please Log in or Create an account to join the conversation.

13 years 1 month ago #36293 by motomike
Replied by motomike on topic stoma care
Thanks for starting thread MamaT. I’m hairy so every few months must shave the adhesive area. (small electric Remington). I use the Hollister 7760 Universal Remover wipes. The contents say flammable so I’m guessing alcohol. Yes, it is a bit irritating but I follow it with anti-bacterial soap and warm water and sometimes with aloe baby wipes.

I'm 70, retired heat/air contractor. After 4 months of keymo ileal conduit (IC) surgery removed bladder & prostate May 2010

Please Log in or Create an account to join the conversation.

13 years 1 month ago #36289 by Patricia
Replied by Patricia on topic stoma care
yep..i have latex allergy....both my caths...the Rob Nel and the Mentor(now Coloplast) are non-latex. Do you use surgi-lube?
only use Fuegera......they just recalled the other type...contained bacteria........might be the culprit. Sucks right?
pat

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne