Choosing the right Doc & Hospital

15 years 5 months ago #21953 by kittylee
Replied by kittylee on topic Choosing the right Doc & Hospital
it was classified as pT2aNXMX

I am a caregiver to my wonderful husband, Ron
10/04 Multiple T1G3 - TURBT & 3 yrs BCG -
9/08 Invasive BLC w/distant mets
11/08 - 3/09 Gemzar/Cisplatin chemo regimen
4/09 Radiation to bone mets
6/09 lung and liver met progression - start ITP chemo
10/09 My darling Ron passed away

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15 years 5 months ago #21952 by Patricia
Replied by Patricia on topic Choosing the right Doc & Hospital
Kittie lee....you said the tumor had progressed to invasive.....but invasive to what? What did the pathology report say? Is it muscle invasive? high grade? Did Dr. Chang suggest a second TURB?
Pat

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15 years 5 months ago #21951 by kittylee
Replied by kittylee on topic Choosing the right Doc & Hospital
We're here at Vanderbilt today and have met with Dr. Chang. He is quite the proponent for chemotherapy before the cystectomy due to the fact that tumors are often understaged for a variety of reasons. May I ask the membership about their experience/opinion with preventative chemotherapy?

I am a caregiver to my wonderful husband, Ron
10/04 Multiple T1G3 - TURBT & 3 yrs BCG -
9/08 Invasive BLC w/distant mets
11/08 - 3/09 Gemzar/Cisplatin chemo regimen
4/09 Radiation to bone mets
6/09 lung and liver met progression - start ITP chemo
10/09 My darling Ron passed away

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15 years 6 months ago #21633 by kittylee
Replied by kittylee on topic Choosing the right Doc & Hospital
Patricia,
Thank you for responding to my question. I have contacted Vanderbilt and I am very impressed. We have an appointment for the last week of this month with Dr. Chang. Many thanks for the information. We are still looking to interview other Docs in order to feel comfortable after talking with 2 or 3. Has anyone reading this reply dealt with UAB or Emory and have something to share (positive or not)?

I am a caregiver to my wonderful husband, Ron
10/04 Multiple T1G3 - TURBT & 3 yrs BCG -
9/08 Invasive BLC w/distant mets
11/08 - 3/09 Gemzar/Cisplatin chemo regimen
4/09 Radiation to bone mets
6/09 lung and liver met progression - start ITP chemo
10/09 My darling Ron passed away

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15 years 6 months ago #21579 by Patricia
Replied by Patricia on topic Choosing the right Doc & Hospital
Kittylee....The best places in the southeast are Johns Hopkins and Dr. Mark Schoenberg who is a top bladder cancer surgeon urology.jhu.edu/markschoenberg/index.php .......Vanderbilt Ingram Cancer Center..Dr. Chang www.vicc.org/dd/display.php?id=3907
I haven't heard much about Alabama or Georgia in regard to bladder cancer.
Pat

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15 years 6 months ago #21575 by kittylee
Choosing the right Doc & Hospital was created by kittylee
Hi folks,
I'm new to the site (and forums) but have spent the last couple of days reading your posts and discussions. My husband, Ron, now 65, was originally diagnosed with superficial BLC Fall of 2004. Turp and 3 years of BCG kept it at bay until now and he has an invasive reoccurance. We are in that stage now where we are trying to learn all that we can about choosing the right doctor and hospital for surgery and reconstruction options. We have not talked to anyone yet about surgery except the urologist that says it is indicated. We live in the Southeast. My question to the members is: Has anyone used a doctor in Alabama or Georgia? And is it okay to talk about specific treatment centers here? Thanks, bunches, for your help.

I am a caregiver to my wonderful husband, Ron
10/04 Multiple T1G3 - TURBT & 3 yrs BCG -
9/08 Invasive BLC w/distant mets
11/08 - 3/09 Gemzar/Cisplatin chemo regimen
4/09 Radiation to bone mets
6/09 lung and liver met progression - start ITP chemo
10/09 My darling Ron passed away

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