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My second opinion consultation ............

12 years 5 months ago #13249 by Gene Beane
Thanks Maria, I wasn't questioning there decision to wait, just inquiring about the time period..I am trying to educate myself on others situations involving chemo treatment etc. everyone has such different approaches to chemo, before after r/c,, it really depends so much on ones personal history..thanks take care, we are all behind you 100 percent!!!!Ginger

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12 years 5 months ago #13246 by Melodie

Terrific news! Finally! I'm so pleased to hear you have a doctor that you now feel comfortable with and a plan in place for treatment. Let me say that although it is scarey, what you have ahead of you, it is much less so when you have a doctor you feel you can trust. Your emotional well being should now improve.

I think you have done your research on this website and know alot about what to expect in regard to the chemo and the surgery but we are always here to help calm whatever fears you have. We BC survivors may all have some differences but thre are also many similarities. During treatment, whenever I got to worrying too much, I would get on this site and talk to someone, and afterwards, would always feel better. Family and friends can hold our hands but no one can really understand but those who have gone through chemo and RC. What a Godsend this website is for so many of us. There will be days ahead that will be challenging to say the least but I know you are up for it. Hang tough and keep us up to date on what is happening with you. Hugs! Melodie

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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12 years 5 months ago #13245 by Maria
Thanks for your support.

Ginger, I am starting chemo next week and that is why I have to wait until end April/early May for RC.

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12 years 5 months ago #13244 by Maria

Maria...finally..i'm so glad this was a good experience and that Dr. Algood listened and made you feel confident in his abilities. He seems to have a very good medical background. Sorry to hear about the nephrostomy tube....i'm actually being tested for that myself next week as i've been having flank pain and they want to make sure its not my kidney.
I'm wishing you the best and you know we'll be here to support you in every way.
I think the Moffitt Center should be thoroughly ashamed of themselves or anyone else thats part of the NCCN or NCI that does not act honorably when someone needs their help......they certainly spend enough money advertising how great they are..and the middle class falls into the cracks once again should be their motto.
Wish i could have been more help.........Pat

Thanks Pat, Please don't say you wish you could have been more help!! You were a great help to me as I am not used to the USA health system and you worked very hard to point me in the right direction and advise me what to do and that is how I achieved my appointment with the Shands. Thank you very much.

I am writing a letter to the CEO of the Lee Moffit Cancer Center
to advise them that I will not be paying their bill! I am more than happy to 'see them in court' and ask adjudication on this one .... if I have to go that far!

I have detailed notes of my consultation at the LMC and I am sending that information too. I will also enclose my own views of my consultation at the Shands and suggest they adopt the Shand's model of care to improve their services.

Good luck with your appointment next week.
Maria xx

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12 years 5 months ago #13231 by Gene Beane

I know Shands, my mom was diagnosed there with a brain aneurysm. I spent many days with her there and was impressed at what I saw. I feel your in a good place. And now someone cares enough to do the r/c, I was wondering why you have to wait til the end of April, is It because of having the treatment first???Ginger

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12 years 5 months ago #13223 by momof4

Excellent! Now that you have THAT whole journey out of the way, you can finally concentrate on you...I know that Chemo, & Surgery are nothing to look forward to...but on the other hand...armed with the knowledge, a great hospital, and Dr. and the confidence and determination you are showing...You will beat this!

In My Thoughts,


Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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