Hi Karen & KH,
I'm going to stick in my two cents worth here, if you don't mind. Although I'm not male I do understand the frustration felt by both your fathers not knowing what to expect with their neobladders and with life in general since becoming a cancer survivor. One thing I know for sure about why they don't tell you everything about what to expect after your surgery, is that each patient is completely different and to tell you all the possibilities could actually frighten a person into not having the surgery. That is not the right decision to make in most cases, and so they tell you very general things about what to expect.
Keep trying to reach someone on this sight who might be able to communicate with them, you might need to be a little pushy about it to get a response. I do know of a male who had this surgery, but his experience would not necessarily be equal to theirs because he was in his thirties when he had his surgery. His name is Roger Barton, and his story is on the storyboard here, and also under tales from the trenches and you can find a link to the trenches on the home page for the Web Cafe. Reading his story might be as beneficial to them as talking with him because if I remember correctly he gives a very detailed acount of his experiences.
One suggestion I have would be to look at other stories from the trenches for men that might be closer to your fathers ages, and also perhaps go page by page through the storyboard front to back and look for men's stories close to their ages. You might have to actually open some of them up before you can tell if a story is about male or female and their particular ages. There is a book I've mentioned on some of my previouse posts and also it's mentioned on the Web Cafe under resource's or something similar and that books title is... THE GUIDE TO LIVING WITH BLADDER CANCER by Dr. Mark P. Schoenberg. The book is written specifically for patients and therefore is easily understood (I believe), and I don't recall exactly the cost but it's definately not very much money.
I hope I have given you both a little information that might help your fathers with their frustrations and perhaps eleviate yours some as well. Best of luck in your search for further information.
Lou