Newly Diagnosed

1 year 1 month ago #61685 by Alan
Replied by Alan on topic Newly Diagnosed
Welcome 90210,

I second Sara Anne's comments. If you have not seen a urologist, you need to. What you describe can be many things from an infection, kidney stones passing, sometimes a cause is never found, and yes types of cancer. Anything else I would add is simply a guess.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 1 month ago #61684 by sara.anne
Replied by sara.anne on topic Newly Diagnosed
I assume you have seen a urologist?  Was his diagnosis hematuria?  What was the explanation for this?

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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1 year 1 month ago #61683 by tom90210
Newly Diagnosed was created by tom90210
Hello,

I was diagnosed with Hematuria, and it causes me to have blood clots that stop me from passing a full urine.  It very painful.  I used to wait for the clots to pass on their own.  It's gotten so bad I have to go to the ER to get a manual flush with a cath.  I'm very exhausted and this taking toll on my mental health.  Has anyone ever experienced this?

If so, what treatment route did you go.  Does it still happen? Did anyone have surgery to fix this?

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