The same reason it's a Hotspot for cancer is also an advantage for treatment. The bladder is a one-way valve, receiving toxins in and preventing them from reentering the body's systems. You should have no problems!
Best of luck, and keep us posted in your progress, please✌️
Hi Hannah, so sorry to welcome you to this group, but it's the best place for support, advice, and info. These guys are great!
I totally agree with all of Eddie's wisdom! I did 2 cups of bleach and left it in the toilet until I went enough to fill it up. You will find you feel the need to go frequently, like every few minutes, but only produce a dribble for several hours after treatment.
Holding it the initial 2 hours was no problem, and I couldn't hold enough for an ultrasound when I was pregnant lol, so I wouldn't worry about that. I had to set a timer ro remember to go after 2 hours, it's that easy. Getting the treatments was easy as well, 20-30 mins for me, check in to walking out.
Seems standard from my experience and all I've read, as the treatments progress, the symptoms get slightly worse, with increased bleeding and need/frequency to urinate. Be prepared, but don't worry, it's not that bad considering you're fighting cancer.
Best of luck! Check in here often and let us know how you're doing!!
Hey Hannah, Welcome to our little group. There are 6 or 7 of us cataloging our journeys and encouraging each other. Even though you are new, you are not that far behind us and we are willing to pull you along with us as you enter your BCG journey. First let me tell you that we all have had similar worries, concerns, and fears. I can also tell you that YOU GOT THIS, and we will attempt to help you along. First, I have to say I am not a Physician. I'm just a guy diagnosed with HGT1 Bladder Cancer and a little time to do some research. Since BCG is an Immunotherapy, it does effect your Immune system. It teaches your cells how to fight bladder cancer. I have looked into information from the National Library at the National Institute of Health. There are many studies/articles there. For me, my wife has Rheumatoid Arthritis and is on an immune compromising drug (EMBRIL) and she is tested for TB on an annual basis normally. Her Rheumatologist told us just to be careful, use good hygiene, and yes use the separate bathroom if possible. Information that I have read indicate that chances of other reactions are so very small. Also, the chances of it effecting your Psoriasis is probably a possibility, but I have to believe It's kind of like reading the warnings on any medication. All things are possible. Most of us have had the same experiences with our first set of 6 treatments. The first couple are a piece of cake and as the bladder gets more irritated from the treatments there is urgency and burning when you go to the bathroom. Here is what I tell myself. I will do whatever it takes to keep this cancer from coming back so I can spend more time with my family. Oh ya, about the bleach. It is the recommended cleaning/sanitizing procedure and since you are not on septic, it shouldn't present any problems as it does for us on septic. I know this is overwhelming at first but this is your best path right now. That you are able to get this treatment that is very effective. You Got This Hannah. We all are pulling for and praying for you. Let us know how it goes each week, we want to know and help if we can. Eddie
Yes, hold the BCG for 2 hours, that was easy. Literally less than 10 minutes at the Dr's office, very easy, catheter in, BCG in, catheter out, done, and headed home. As to the clorox, because i have a septic system, I was concerned about the long term effects it may have on my septic's health. So, I did a bunch of research. I decided to minimize the clorox. I have a private bathroom all to myself, so all voiding was done there. I used about a cup of clorox and didn't flush till the end of the 6 hours post BCG. My take on the clorox is that it has been a long standing practice that was put in place to protect the manufacturer from law suits. I don't believe there has ever been any case of someone getting tuberculosis from BCG treatments. Yes, it is wise to be cautious with good personal hygiene. Your situation may be different, so take my words for what they are worth. I am not a doctor or scientist.