BCG Treatment Journey

1 week 12 hours ago #61701 by Pickle_Bill
Replied by Pickle_Bill on topic BCG Treatment Journey
Thanks Eddie, Had my second treatment Monday. All went as planned. No adverse side affects. We got this.

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1 week 1 day ago #61700 by EddieS
Replied by EddieS on topic BCG Treatment Journey
Had my Cystoscopy today, 3 weeks after my 6th BCG Treatment. Everything looks GOOD so far. I am waiting the outcome of a urine test to see if any cancer could be detected. My Doc scheduled me for another Cystoscopy in 3 months and then a week later, phase 2 of treatments. 3 BCG treatments this time. It was interesting to watch the monitor as she explained what she was seeing, every step of the way. She saw some scaring from the 2 surgeries but she said things were healing well. I guess I'm REALLY on my way. I won't forget about you all. I'll continue to post along the way, specially if I have any symptoms from the first round of treatments. Hang in there everyone, we got this.

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2 weeks 3 days ago #61690 by EddieS
Replied by EddieS on topic BCG Treatment Journey
Hey Bill, sounds like you are on the same path that I am, just a few weeks behind.  I will leave some bread crumbs along my path as I walk ahead of you so you can follow me and not get lost.  As my last post said, I completed my first set of 6 BCG Treatments almost 2 weeks ago and am scheduled for a Cystoscopy on the 22nd of March.  Hoping that will come out good so I can continue on my 3 year program.  I wish you luck today.  Believe me, I know all the thoughts swirling around in your head.  Just take it one day/week at a time.  Follow me and I'll pull you along.  So a little update.  Since my 6th treatment, things have been going along as if nothing happened.  No burning, no cramping, nothing really to report, so I guess that's good news.  I will post again after that wonderful camera check.  Hang in there everyone.  Eddie
The following user(s) said Thank You: Alkamodaddy, Pickle_Bill

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4 weeks 21 hours ago #61668 by Alkamodaddy
Replied by Alkamodaddy on topic BCG Treatment Journey
We are on the same page.  The first time I stayed I made the reservation online.  When I got there, I asked if they had a special rate for hospital patients and since they are a half mile from the clinic, they said they do.  It was a better rate than online, or even AARP or Rewards member rate.  But you are correct, you have to ask at the motel desk directly.  For those of you that have to travel somedistance for your treatments and are considering where to stay after the treatments, I firmly believe the motel is the way to go even if you have family in the area.  After reading all of the scary stuff and having to use bleach etc., I chose the motel over staying with my daughter and her young family.  It's a personal choice, but it is what I did.  Good luck!

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4 weeks 1 day ago - 4 weeks 1 day ago #61667 by eddiek
Replied by eddiek on topic BCG Treatment Journey
Here's another thought, some hotels/motels have reduced lodging rates near medical centers.  The special medical lodging rates are usually not found on reservation websites; you should contact the property directly to ask if they have a special rate for guests receiving medical treatment at nearby hospitals. 

When Cynthia was receiving treatment at MA General in Boston, we were able to get reduced lodging rates for medical patients at two nearby hotels.

All the best for a successful outcome!

Edward J. Kinsella
American Bladder Cancer Society
Board of Directors - Treasurer/Secretary

& Caregiver

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4 weeks 1 day ago #61665 by Alkamodaddy
Replied by Alkamodaddy on topic BCG Treatment Journey
I did sign up for the rewards program at the chain I am staying at.  Good tip though!

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