BCG Treatment Journey

2 months 1 week ago #61917 by Alkamodaddy
Replied by Alkamodaddy on topic BCG Treatment Journey
Thanks!!

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2 months 1 week ago #61916 by Pickle_Bill
Replied by Pickle_Bill on topic BCG Treatment Journey
Treatment 8 & 9 done. Things went much better with the catheter these last two times. I do notice that each treatment is a bit more difficult...more spasms, cramping, urgency, a bit more blood, but that could be due to the blood thinners. Regardless, it's nothing I can't handle and only last for a day or so. Cystoscopy on August 24th. Trying to plan a trip out to Moab to go Jeeping around the end of September. It's been on my bucket list, just gotta get up the nerve to actually do it. Long drive from New Hampshire to Utah, and leaving the comforts of home is a challenge for me.

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2 months 1 week ago #61915 by rheako
Replied by rheako on topic BCG Treatment Journey
Great news, Hank! Congratulations!!

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2 months 1 week ago #61914 by Alkamodaddy
Replied by Alkamodaddy on topic BCG Treatment Journey
Hi all,
I had my cystoscopy a couple of days ago. Doc said everything looks pretty good.  There were a couple of red spots, but he was not too concerned about it.  He did do a cytology though, and that came back negative for carcinoma.  So overall so far so good.  Now it's on to the next round of 3 BCG treatments and another scope in November.  Keep the faith!
Hank

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2 months 3 weeks ago #61899 by EddieS
Replied by EddieS on topic BCG Treatment Journey
Hey Bill, boy things are bad enough without extra injury complicating the problem.  Glad you were able to get it to stop.  Well you got a week to heal before the next one.  It seems like during the treatment period we are just living week to week for 3 weeks looking forward to that 3 or 6 month break.  Hang in there.  Next Cystoscopy for me is Sept 20th and then another round of 3.  My Doc did tell me that their supply of BCG is running low and they have ordered more.  Hopefully it will come in before Oct 1st.  I wonder what they do if they don't have any.  I guess they send you home until more comes in.  I don't know what the shelf live is on BCG but5 from the sounds of things a 1/2 dose very close to a full dose.  Maybe they will have to start doing that so they can reach more patients, we'll see.  Hang in there, 2 more to go and then you get a break.  Eddie

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2 months 3 weeks ago #61898 by Pickle_Bill
Replied by Pickle_Bill on topic BCG Treatment Journey
Had treatment #7 yesterday after the three month break. Things did not go smooth with the catheter. Never had a problem before, same nurse this time. As she was inserting the catheter, she must have scaped on my urethra somehow. I started bleeding a lot (I'm on Plavix blood thinner). She panicked a bit and went to get another nurse. The new nurse got a different type catheter and proceeded with the treatment. Clean up took a bit, and pressure on my penis eventually stopped the bleeding. I went home with my weiner wrapped in gauze and instructions to go to the ER if I kept bleeding. Things were OK on my first void, just a big blood clot at the beginning that was expected I guess. The next couple voids were normal mostly just some smaller blood clots. The next void produced another large clot and then the bleeding started again. Took about 10 minutes of pressure to get it to stop. Today I spent most of the day just taking it easy in bed, drank plenty of water and things seem OK. No more blood, but anxious that it could start again. I am also anxious about them still giving me my treatment considering I was bleeding. Granted, I was not bleeding from my bladder that I know of. I think the blood was from just a little way down inside my penis. But i'm still concerned, not only about BCG in my blood, but also about next Monday's treatment. The first 6 treatments went so well, and now i'm anxious and uncomfortable.

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