Hannah, thanks much for sharing your experience! I am still on the BCG protocol, but I may have to switch at some point. Knowing what to expect is priceless! I am hoping for the best outcome for you and everyone else in the “club”. Keep the faith! Hank
Having had 3 treatments (gem/doce) thus far, everything is going as expected. First gemcitabine is instilled via catheter and it has to remain in the bladder for 45 minutes. This is the hard part as bladder spasms occur intermittently and they are painful. I'm not sure if the spasms are caused by the fluid trying to escape or due to the chemical nature of the gemcitabine. I did take a 20mg tablet of trospium that is meant for spasms; however, it didn't really help much. Once the gemcitabine is expelled, the docetaxel is instilled and I can leave the office and then expel it in about an hour later when I am at home. I haven't had any spasms with the docetaxel. The only other issue is burning when peeing , but that only lasts for about 24 hours and then back to normal.
Hannah: Ahhhh, I like that on site personal reporting. Yes, please keep letting us know how you are doing, what the treatments are like, what symptoms you are having, you are one of us. We want to stay in touch. You are the gem/doce trail blazer of the group. It encourages us to know how you are doing. Please keep posting with updates. Maybe we will all have a reunion in Moab if we make it thru, I meant, WHEN WE MAKE IT THRU. Positive Thoughts, hang in there. Eddie
Eddie, I am on the table receiving my second gem/doce treatment as we speak, lol. So far so good, but more time- consuming. Just minor spasms so far, but I know the side-effects/ symptoms will get worse as I go, just like the BCG. I would love to compare notes with you, Hannah!
I want to go to Moab!!
Hope everyone is enjoying the summer!
Good news for all!!!!!!! Bill, we did MOAB a few years back, well worth the visit but you are right, it would be an exceptional drive from New Hampshire to South East Utah. Hopefully you would plan to see some things along the way out and back. There are a lot of things to see going Interstate 90. Tons of stuff in South Dakota (Rushmore, Crazy Horse, Bad Lands, and 100 other things) and Yellowstone in Wyoming before dropping down into Utah. Might as well make the long drive worth it if you decide to come this way. Glad things went better for treatments 8 & 9. Hank, Negative for carcinoma are the SWEET words we all want to hear after that Scope and Urine test. It seems like we are on pins and needles each time when we go in after that 3 or 6 month break. Rheako and Hannah, weren't you 2 going to be start gem/doce? Did that happen or are you still waiting? If you have started, how is that going? Stay Strong everyone! I'm praying for you all. Eddie
Hey Bill, Glad things went a little better. I was worried after hearing about your first of three. Now at least you get a break. I try to keep the perspective that if my body not liking it, it’s fighting the cancer, so it’s a good thing. Any ways, I hope you’re able to take that trip! Keep the faith!