Any tips on dealing with the excruciating pain while urinating? It is 5 minutes of the most agonizing burning and cramping feeling there is. I'm even on Vicodin and phenazopydine which is supposed to alleviate bladder pain, also makes your urine a deep orange color. Pain is not in bladder though, it's in urethra.
Ricky - You much the same as me and probably a lot of other folks on this board. And the waiting is the hardest. It took 21 days for me to get my pathology from my first TURBT and so after I changed Doctors. Once you know exactly what you are up against then you can start asking the questions and formulating with a Doctor that you trust decision on your healthcare from that point. With my first TURBT I did not have Mitomycin, but did with my second followed by six weeks of BCG and will return for my Poke and Peek next Wednesday. I have TA G3. Also you asked the question why you have negative cytology if you in deed have cancer....well I have negative cytology and have had 6 tumors removed in two TURBTs. Negative cytology is possible if the cancer does not slough off cells, therefore will not be in your urine. This is why I feel the cystoscopy and TURBT will give you your definite answer.
Here's wishing you the very best and hang in there you will have an answer soon....We are all pulling for you here.
Take Care, Sandra
BTW - I am a Southern California Girl, graduated from school down the Freeway from you in Bakersfield. Live on the Other coast now!
"Grandmothers are just antique little girls...."
I just read your story and I can relate to your concern. Unfortunately you won't know all the answers to your questions until you get the path report. I believe that the report is back in a few days you just don't get to see it until the your post op appointment which is usually two weeks after your surgery. If you call and bug them they will usually give you the results. By the way I am located in Sacramento.
Ricky: Good luck!! Hopefully you are recovering from TURBT by now. Let us know the results etc. when you get back on-line. I had the same in December 06 followed by BCG treatments & have been pleased with all. Keep in touch, we all want to help and share our experiences. Best Regards, larry