New to forum, I did not think to share

2 years 2 months ago #61149 by LandJax
I started bleeding 02/2020 but was ignored by primary care. He gave me anti biotics and stated I should leave his office because Covid was all he was worried about. Still bleeding 07/2020, had to initiate hospice care for wife, initiated Medicare and selected insurance with no specialist referral required. 10/20 finally set appointment with urologist, lost my wife. 11/20 You have bladder cancer, one large and many small tumors. 01/21 first surgery. After this point I would have to study my urologist's web site for dates but 6 weeks BCG, fry some tumors with a cattle prod, another surgery for multiple tumors, 6 weeks BCG, another surgery for multiple tumors. While I was in the prep room for this last surgery the doctor came in and told me this was the end of his involvement in my case, I would be getting a "smarter" Doctor. Felt like I was being Fired. Recovery from all this was fairly fast, only went home with catheter on the first surgery and was always back to work in a couple of days. The BCG had no side effects and the whole time I felt pretty good.  I met my new Doctor, she stated the cancer was non-muscle invasive, called it TA... and tried to get me into clinical studies for non responsive to BCG patients. Did not work so she wanted to start a new Chemo treatment (gemsideabean??) and scheduled another surgery for 12/30/21. Had the surgery, she chewed me up and laid in the first chemo treatment. 2 weeks later at my last visit she states I am T1 and the cancer has infested the connective tissues. She tells me we will start the chemo infusion in ten days. At that time I had blood in my urine and was still unable to drain bladder completely. Supposed to start this new chemo in 5 days but more blood, color and coagulated than I have seen since it all started. I don't think they will be able to infuse me. Never empty and urgency are part of my days. Thinking maybe I should just demand it be removed and a valve w/bag be installed before it kills me. What say you?

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