Pre-diagnosis, CT tomorrow

2 years 4 months ago #61077 by Jack R
Replied by Jack R on topic Pre-diagnosis, CT tomorrow
June,

Hoping for a good Monday for you.

Either way, all news is good news. Either it is all clear OR you have new information that can help with the journey back to optimal wellness. The worst is waiting and unknowing. Yes, enjoy the holiday(s) - it is important to hold on to as much  normalcy as possible.

Best,
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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2 years 4 months ago #61076 by June
Replied by June on topic Pre-diagnosis, CT tomorrow
This week has been quite busy in "My Bladder Cancer(BC) Journey" as I have been to three different hospitals but I got the all clear so all worth it with just one more test result to come on Monday I live for another 3 months until the next round of testing, even plan on going on holiday. Well done on your own personnel "Ankr app" and long may it continue. Your emotional journey sounds much the same as mine as it's in the early hours when you lie in bed thinking about the whole stupid world that has been thrown at us and the question is always "Why Me" but you get up and get on with life as it is and thats what counts.

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2 years 6 months ago #60989 by Ntl00568
Replied by Ntl00568 on topic Pre-diagnosis, CT tomorrow
Scope was negative today. Watching and waiting on the stones!
I just wanted to close this loop in case anyone else is on the forum looking for answers and reading these stories.
I spent weeks reading through these posts. Just having this forum and reading all YOUR stories made a difference for me during these anxious weeks. I wish each of you caring people all the best on your journeys.
You guys are inspirational.  

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2 years 6 months ago - 2 years 6 months ago #60974 by Alan
Replied by Alan on topic Pre-diagnosis, CT tomorrow
I almost never second/early guess as I have been wrong too many times BUT, I am betting with Sara that stones are likely. "Size and position" male sense.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: Ntl00568, Sherilgirl

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2 years 6 months ago #60973 by Ntl00568
Replied by Ntl00568 on topic Pre-diagnosis, CT tomorrow
Fingers super crossed.

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2 years 6 months ago #60972 by sara.anne
Replied by sara.anne on topic Pre-diagnosis, CT tomorrow
 My betting money is on stones !

sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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