help please

2 years 10 months ago #60426 by Jack R
Replied by Jack R on topic help please

It seems the doc may be concerned about cancer in the Upper Tract - the ureters, renal pelvis and kidneys. In a hospital or outpatient center, the suggested tests would likely be a retro or Reverse Pyelogram (as suggested) -squirting dye up the ureters and taking radiographs, OR a ureteroscopy - like a cystoscopy, but continuing through the bladder, up each ureter to the renal pelvis, looking and taking samples. Google "Ureteroscopy" and also "Upper urinary tract cancer".

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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2 years 10 months ago #60419 by Alan
Replied by Alan on topic help please
First, urine cytology often presents with false "positives". I even had one false "positive" a few years ago. I am just guessing only because the wife had one 30 years ago the test is called a retro-pyelogram (someone else may know of other tests as I am not a scientist). It shoots on up into the kidneys. The CT Scan that you had is a good test and with nothing seen that should be seen as good news.

I would just call the URO's office and ask the nurse if you want a definitive description of the test. As always, it is simply one day at a time and here's to seeing this as nothing. Let us know!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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2 years 10 months ago #60418 by busaman
help please was created by busaman
Here is my brief history.
Diagnosed with malignant tumors.
6 BCGs.
New scope, doc said everything looked good.
My next cytology said "suspicious for urothelial carcinoma."
Another CT scan, negative.
Another scope, doc again said everything looks good, no obvious tumors.
Now I am getting another urine test and doc says if it comes back positive again he will admit me to the hospital (surgery center) for another test that looks at what going on between the kidneys.
What is this called?

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