Hello,
I have completed 12 BCG installations over the past several months. (6 +3+3 with appropriate pauses in between) for high grade non-muscle invasive BC.
I had usual effects for 2-3 days after each BCG, -- no big deal -- until session 10. Since then the effects have stayed steady for weeks. Although incontinence stopped after first week out form session 12, the urgency, burning and fatigue have stayed for a month.
My Uro is giving me mixed signals about continuing for what would be the final 3 sessions (achieving 15 BCG altogether, his original plan for me). He seems to think I can just not have any more if my BCG side effects persist.
Or is there a middle way? Less dosage? More time between sessions (as opposed to 3 weeks in a row)? I cannot find any studies on line that measure the risk/benefit. The urgency really has changed my job and life this past month, so I don't want more irritation than needed to ward off return. How much irritation is enough? Is there a formula, or is this part of treatment more art than science, more individual than collective wisdom? Thank you.
