Long Term Effects of BCG

6 months 2 weeks ago #60075 by Lin281693
Long Term Effects of BCG was created by Lin281693
Had my third BCG today, and felt fine. Came home and took a nap, when I got up to pee, there was and still is blood in my urine and burning sensation like cystitis. Called the dr and he said its normal for a lot of people and to call back if the pain gets worse. Has this happened to any of you? So disheartening.

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6 months 2 weeks ago #60076 by sara.anne
Replied by sara.anne on topic Long Term Effects of BCG
Yes. For me the blood would last for several hours and the burning/ urgency for several more. This is GOOD since it indicates that your immune system is kicking up and trying to rid your bladder of any “bad” cells. Drinking a lot of water should help.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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6 months 2 weeks ago #60077 by Lin281693
Replied by Lin281693 on topic Long Term Effects of BCG

Thank you Anne, helps to share

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6 months 2 weeks ago #60078 by Lin281693
Replied by Lin281693 on topic Long Term Effects of BCG


Sorry I meant Sara, how far along are you with your treatments

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6 months 2 weeks ago #60079 by sara.anne
Replied by sara.anne on topic Long Term Effects of BCG
I had 6 weeks of induction, and then several months later began maintenance treatment of one a week every three weeks every three months for two years. Toward the end, it got very uncomfortable, and the dose was reduced to 1/3 the initial dose. But I am proud to say that I finished!! I have now been cancer-free for 12 years!! It was worth it!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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6 months 2 weeks ago #60080 by RJake1
Replied by RJake1 on topic Long Term Effects of BCG
I take AZO to help w discomfort on urination following BCG. Made a world of difference for me. Didn't totally eliminate discomfort but made it bearable. I take it as soon as I get home from Dr. I then take Motrin or ibuprofen after my 2 hour "holding period." Good luck. (AZO can be purchased at pharmacy over counter or on Amazon).

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