HI all, new to the forum, diagnosed with Ta/Toa papillary urothelial carcinoma, non-invasive. Have had the surgery TURBT(?) twice, one to remove the bladder tumor, one to laser the tumor portion that had grown into my ureter. Had a stent in for 3 weeks of misery. (learning all these new terms, kind of)
So now to endure the BCG treatments that begin next Thursday. It is difficult to determine what my weeks will look like during these 6 weeks, I will have most of the treatments on Thursdays. Will I be feeling decent 3 days after? Or kind of miserable throughout the week the whole 6 weeks? I have read that adverse symptoms get worse as the treatment progresses. I had a short trip planned at week 4, my doc said I could take that week off, but just cancelled it because I don't want to travel if I am not feeling well and energetic.
I have read a lot of info from the forum, very helpful. I just want more specifics about how the rest of the week usually plays out after BCG day and what some of the best ways there are to cope with the adverse effects. Do you think I should take the antispasmotic Myrbeterique? It helped with the stent. Don't want to take too many painkillers, what else helps? Pyridium? (after saturating myself in that, AZO, during the last few procedures I had a rash developing on my stomach and the doc said lay off of those for awhile) Does walking help or make it worse? what is the worse symptom? I know everyone is different. Should I ask for 1/3 dose? How many days do I need to stay near the bathroom? Any help y0u can provide is appreciated. Thank you and best of luck to all.
8/20 tumor found, 2 TURB with stent, tumor resected from bladder, another portion lasered from ureter, Toa,papillary urothelial carcinoma, non-invasive, high grade, BCG began Oct 22,2020
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