Congrats on getting your initiation phase over with - and all my best with the next scope.
I have noticed others reporting arthritis like pain here on the forum, so definitely mention to you doc.
I have not suffered from this, but have had a multitude of other side effects from the BCG, make sure you are talking with the doc and ask about reductions in dosage for you maintenance phases to reduce the hip pain.
The research shows only a 2% difference in 5 year outcomes with reduced dosages so don't be afraid of having the discussions - you are ultimately in control of your treatment.
We are with you in spirit and look forward to hearing about the results of you next cystoscopy.
1 week 4 days ago - 1 week 4 days ago#60015by Alan
Glad you have completed a round of 6! Yes, the biggest reason for a scope is to check to be sure there are no tumors. Also to check the general view such as inflamation which is often found. As far as arthritis. There have been some posters that feel the BCG has caused a flare up. This would make since as this have often been linked to immune issues and that is what BCG does....revving up the immune system. This is something to mention as well as any other issues on your check up. The good news is you are on the way to beating this!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Yes, the cystoscopy would be to see if the BCG has been effective. The initial course of BCG treatments usually lasts 6 weeks and then there is a check cystoscopy.
Do discuss the pain in your hips with your doctor, especially if it is new. Arthritis is a relatively uncommon but possible side effect of BCG. If you and your doctor decide not to continue with additional BCG you will already have gained significant good from what you have received. And there are other options for additional treatments if your doctor decides that is necessary.
Congratulations on finishing the first course!!
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society