Recently diagnosed & scared

PET completed this morning with results tomorrow. Hoping for the best

Ok my primary just scheduled me for a PET scan for tomorrow. Those results can obviously alter my treatment and next steps. I would assume if they find cancer activity in other parts of my body then a second TURBT would not make sense since it would be obvious that the bladder cancer was the source since I had a CT that found the bladder cancer originally and no other tumors.

Has this scenario ever come up? Would they schedule for me to have the bladder removed, possibly prostrate and lymph nodes? Getting ahead of myself but I’m a planner and fixer. I need mentally to go through these things. It helps me prepare and feel like I have some resemblance of control. I fully understand I am asking for things and information that have not been verified. Please bear with me.

Thanks again Sara Anne. I have met with my primary and I have been given some anxiety medicine but as you all know this overwhelming. My physical issues are real. My primary has referred me to Dana Farber. They are trying to get me in tomorrow morning. The speed of this decline of physical issues is crazy.

Still here and scared as hell. I have neuropathy, swollen lymph nodes and constant back & flank pain. Not sure how I got hereto quickly. Blood in urine on 8/22. Diagnosed with bladder cancer on 8/28. TURBT on 9/14. High grade and non muscle invasive yet I feel I’m losing the battle very quickly. Try to stay positive but tough as hell. Don’t know what to do