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New, Awaiting Pathology

1 month 5 days ago #59728 by sara.anne
Very good news indeed! Suspect you have the path report figured out, but I will offer a brief interpretation anyway. Your tumor was like a little mushroom sticking out of the bladder lining.
It was low grade, meaning that it is not rapidly dividing and spreading. Another bit of good news is ithat muscle was included in the sample and the cancer had not spread into it.

Your urologist will probably put you on a schedule of cystoscopy exams every three months for a while since this type of cancer does have a nasty habit of returning. It is very important that you keep these appointments religiously!

All in all a very good report. Congratulations!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 month 5 days ago #59727 by terribleterrier
Thank you everyone for all your support <3

This has been very scary but having people who have been there makes it easier.

I finally got the surgeons/pathology report and diagnosis!

Diagnosis was "low-grade papillary neoplasm, favor papillary urothelial neoplasm of low malignant potential. Muscularis propria was present." Which doesn't mean a Whole lot to me since my major was biopsych and not biomed- I'm not totally lost but I know that is at least very likely to be decently good news!

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1 month 2 weeks ago #59684 by Raebel
Frozen, such a tough time for you. Glad you are reaching out, and so glad your partner was looking out for you! Since you are so young you may not get too many responses from people your age so you might also want to try the BCAN support group pages (also they have a wealth of good info on their site, and also a support type site called Inspire. I am 66, diagnosed in April this year, still trying to find my way through. Best to you. Don’t forget to breathe!

Dx 4/8/2020
TURBT 1: T1HG
TURBT 2, delayed due to COVID, 6/17/20: T1HG, CIS
BCG induction (6)

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1 month 2 weeks ago #59679 by sara.anne
Frozen, there is one moral to your story that I wish everyone, especially female, would take to heart. I was having multiple UTI's also. My then primary care doc kept prescribing antibiotics (over the phone.) Finally a gyn nurse practicioner told me that IF YOU HAVE MORE THAN 3 UTI'S IN A YEAR YOU GO TO A UROLOGIST. Yup. Not UTI's, but bladder cancer.

It is now 12 years later and I am cancer-free. You can be also

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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1 month 2 weeks ago - 1 month 2 weeks ago #59678 by Alan
terribleterrier,

Welcome. As you "titled awaiting pathology" is the key. You really won't know much until that is completed. While the description sounds like a papillary tumor (mushroom growth like), stranger reports have come out as something else that is not cancerous.

A couple of quick takes. 3 months follow up may be OK IF, this growth is rated as a low grade tumor. The normal protocol is simply "waiting and watching". Also, if the path report does not show complete "margins" meaning enough of the muscle was taken to be sure it has not invaded further, a second TURB is often done. Same thing with a "high grade" tumor. A second is almost always done. If this is high grade an immunotherapy drug is often used to rev up the immune system. It is called BCG which you can read about further on this web site.

The important item in all of this is your URO. Make sure the practice sees a lot of bladder cancer as so many deal with mostly prostate cancer. Keep a copy of the path report for reference. It is yours....you paid for it. Should you have any reservations a second opinion is often helpful if for no other reason than confirmation and peace of mind.

If this is bladder cancer it is treatable and beatable. Let us know what the path report says and go from there.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 month 2 weeks ago #59674 by terribleterrier
Hello, my name is Frozen (they/them)

I am a 23 year old DFAB (designated female at birth) individual who last Wednesday was diagnosed with bladder cancer.

Long story short after learning about my 2 hellish years of 9+ UTIs (some showing up right after finishing a course of antibiotics) and not having a primary doctor my partner convinced me to seek help from a urologist. He has chronic cystitis and could tell that my symptoms were highly abnormal- even helped me pick my practitioner and gave me rewards for making or going to appointments.

On my first appointment they found a mass on ultrasound and said, I quote, "We always can't rule out cancer when it's a mass but you're far too young and shouldn't worry about it."

10 days later I'm in the surgicenter for a cystoscopy and small tissue biopsy- but I wake up 2 hours later with a catheter and the news that the 2cm mass was cancerous and they totally removed it along with that portion of the bladder wall. The surgeon note says that it was a "frondular tumor that was approximately 2 cm long attached to the bladder by a stalk" and says it has "the appearance of a transitional cell carcinoma"- but I am not able to call for pathology results until the 12th. They want me back in for another cystoscopy in 3 months.

The catheter was the worst thing ever and I never want it again I haven't returned to work because I am a dogwalker and don't think that I trust myself to hours of strenuous activity in the heat just yet- especially since urinating still is uncomfortable. I'm mostly just scared and grateful that my partner encouraged me to go in and see a specialist. I'm turning 24 in about a week and instead of being excited I'm just trying to get through both a pandemic and a cancer diagnosis.

I'm just trying not to feel so alone and afraid in all this.

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