Low grade bladder tumor

Hi Erza5, considering the age of your father, neobladder is definitely the first choice for the urinary diversion, provided you choose the doctor who has done many neobladder surgeries. There is some complication like hypo-retention but it is less than 5% chance. It is a good choice to have the bladder removed even though it is not muscle-invasive because it gives your dad the best chance to live the longest.

The main concern for neobladder is continency. Most neobladder patients learn to be continent during the day, but some may not be able to learn to become continent while sleeping. Still, there are some devices like condom catheter which a neobladder patient can use during the sleep to avoid leakage. As a matter of fact, I know a man who says prefer a condom catheter as he can sleep through the night. Also considering relatively young age of your father, the other main factor is that other diversions such as ileal conduit or Indiana pouch require the use of urostomy bags or single-use intermittent catheters for which the lifetime cost can be substantial if your dad is not fully covered by the insurance.


Best wishes.

Thank you for your reply Sara.Anne

I am not sure about the BCG, i think my father was given that after his first scraping surgery but not the other two times. We do not have a cancer institution in our country, so he is being treated at the urologic department of our public hospital. He did visit several doctors at private hospitals for second opinions but they all gave the same conclusion. Now we are hoping that it will be possible for him to get a neobladder, but the doctors say they won’t know for sure if it is possible until they start the surgery.

We were hoping to see about treatments at neighboring countries but with the current pandemic situations it is not possible.

Could you tell me what to expect after the surgery? What complications may arise?

Hello, my father was diagnosed with bladder tumor last year. He is 57 years old and leads an active, healthy life. He has had three scraping laser surgeries and each time the results were that it was low grade bladder tumor, the first time it was Ta and the second and third time T1. Now the doctors recommend bladder removal surgery, because although the cancer has not spread to other organs it has almost completely overtaken the bladder.

If you have or had similar diagnosis, what solution did you make and what do you recommend?

What should we expect from the Bladder removal surgery?
Are there any medications that are effective in preventing it from spreading or of escaping surgery completely?
Can you recommend any effective medications that we could ask our doctor about?

Also I should mention that my father was not given any kind of medication either before or after the scraping surgeries.

Thank you!