I received my first surgery in February 2019. I received my second muscle biopsy in March 2019. The diagnosis is that I am high-grade, minimally muscle invasive. That was followed by six weeks of BCG. Three months later I receive three rounds of BCG. After that the shortage resulted in not receiving additional BCG treatments.
I am on a regimen where I receive a cystoscopy every three months. The last one was inconclusive. Unless something shows up in my system allergy, or cytology, there is no plan for additional BCG treatments. My next one is in April.
I find that I live pretty easy until about two weeks prior to the
next cystoscopy at which time I get anxious about the next one.
For me, it’s an ongoing wait and see.
Given the circumstances, I think the best that we can do is learn to be emotionally/mentally healthy, and try to live and eat healthy, and carry-on with our lives.
1/1/2019 Happy New Year: What is that red tint in the toilet
1/2/2019 Primary DR - might be first signs of BC
1/9/2019 CT Scan, Urine Culture, PSA test - ALL CLEAR
1/13/2019 Cystoscopy show what looks like Papillary
2/1/2019 TURBT
2/5/2019 Clots and blood clog urethra go to ER
2/7/2019 DX: HG...
