Sorry to hear about your experience with the referral. Stage 2 is not something you want to fool around with. If you do not hear from the doctor by after lunch time tomorrow, I would call and ask about this. If they have not referred you, I would suggest that you "self-refer" to a urological practice that sees a lot of bladder cancer patients....preferably a university or NCI-designated cancer center. If you need suggestions, let us know where you are geographically and some of our members may have ideas for you.
Best of luck~
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator