Went to hospital with lower back pain ( only 1 urinary infection ever in life , no other urinary problems) and left 4 days later having gone through being told had early stage bladder cancer, need turbt to remove and test it. Went back for 2nd scrap and 2nd biopsy. Low grade, non invasive, . Dr keeps telling me how ‘lucky’ I am as it was caught accidentally looking at my overies during ultrasound. Stated need 6 week bcg treatment to make sure all cells are dead after the turbt. Ok . My work is traveling and only home every 10 days, dr said no , must be every 7 days can’t be every 10 days. So I scrambled around , working with my employer to figure out what to do and how to do ut( thank god I have amazing employers). I am having to basically take off for 6 weeks with partial pay... but hey this HAS to be done! So after my first bcg treatment last Thursday I got very sick. ( I also list my spleen in an accident years ago so am somewhat immune compromised) . So I call with my side effects... my doc not available.. on call doc says “ what I’m going through not from bcg. WHAT!!!! I was pretty damn healthy prior to this , felt fine day of bcg , now feel like death warmed over... but not bcg!!!! So I said to hell with that went back to hospital. They had me in and out within 43 minutes claiming nothing shows up in any of the tests. Anyone else get blood, urine, and exrays taken , looked at , and released from any facility in 53 minutes from time you walked in to time you walked out???? Yeah I didn’t think so. Monday called MY doc , nurse says never had anyone claim dizzy, mental confusion, along with nausea, and stomach pain. Must be something else but we can skip next treatment....WAIT...WHAT!!! Skip treatment... I gave up 6 weeks of work... money lost and company doing without my being there to run what I run because it MUST be every 7 days ... but now... ‘ oh well we will just skip one!!!!!
I’m so angry and confused and now suspicious of these damn doctors I’m debating saying to hell with it and just let the cancer run it’s course. But I don’t want to die. And dr also never said anything about more treatments after the first 6 but everything I read says it’s years if it. My company went way out on this one... I can’t expect them to ever do this again. I’m just at the end of my rope... and 2nd round bcg day after tomorrow??? Thanks for letting me vent
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