1. Forum
  3. All Categories
  5. Newly Diagnosed, New To The Forum
  7. You need to be sure that you are seeing the right medical doctors

You need to be sure that you are seeing the right medical doctors

4 years 10 months ago #57770 by KS
Replied by KS on topic You need to be sure that you are seeing the right medical doctors
Sara Anne,
The biopsy results state... High- Grade Pappillary Urothelial Carcinoma
Focal invasion of the Lamina Propria is seen.
Muscular propria not identified.

Please Log in or Create an account to join the conversation.

4 years 10 months ago #57769 by sara.anne
Replied by sara.anne on topic You need to be sure that you are seeing the right medical doctors
Exactly what does the report say? Sometimes they use other words for things.

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

Please Log in or Create an account to join the conversation.

4 years 10 months ago - 4 years 10 months ago #57768 by Alan
Replied by Alan on topic You need to be sure that you are seeing the right medical doctors
That is a big key. Either way this is treatable and beatable. Just look at the many posts in this forum. Treatment protocols change drastically from stage 0 or 1 to stage 2 or more. Even then, it all can be tweaked. Someone should be around to give our 2 cents worth as "ones that have done it". The important item is you are on the way to attack this.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: KS

Please Log in or Create an account to join the conversation.

4 years 10 months ago #57767 by KS
Replied by KS on topic You need to be sure that you are seeing the right medical doctors
Alan, it doesn`t say on the report what stage it is. I am calling tomorrow to find that out

Please Log in or Create an account to join the conversation.

4 years 10 months ago #57766 by Alan
Replied by Alan on topic You need to be sure that you are seeing the right medical doctors
Forgive me for asking but, I don't recall if your report told what stage your cancer is at? If it is stage 2,3 or 4 a cystectomy is the normal protocol where Pet Scans are sometimes used to be sure how far the tumor has gone. Stage 1 is usually immunotherapy such as BCG.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

4 years 10 months ago #57764 by KS
You need to be sure that you are seeing the right medical doctors was created by KS
I see the oncologist for the first time on June 13th. My biopsy findings were High- Grade Papillary Urothelial Carcinoma. I would appreciate any input on what questions should be asked from those who have been down this road before me. I have a list of questions prepared, but just want to be more informed.
Also, is it more or less a standard thing that when something like this is found, that a Pet Scan is ordered?

Please Log in or Create an account to join the conversation.

Moderators: Cynthia, eddiek, sara.anne
  1. Forum
  3. All Categories
  5. Newly Diagnosed, New To The Forum
  7. You need to be sure that you are seeing the right medical doctors

Login