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BCG Treatment not starting for three months after TURBT - is this ok?

1 year 4 months ago - 1 year 4 months ago #57484 by Alan
If there is a norm or average from what I have read 6 weeks is about it. I have seen 12 week waits. There could be reasons for 12 weeks. The TURB could have been more extensive in the burning and digging. Your Dad's age. The current shortage of BCG.

Two quick observations. Tumors do not grow super fast so another 6 weeks is probably not a major problem. At the same time you may want to call the office and either ask for an accelerated induction schedule or an explanation 6 vs 12. I know this is not exactly what you want to hear but, wanted to put some perspective on it.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 4 months ago #57481 by megepj
Thank you for your answer. I would be happy with starting in six weeks, but they scheduled it to start July 17th, and he had his surgery to remove one tumor two weeks ago. I just wonder if anyone else had to wait three months to start.

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1 year 4 months ago #57480 by sara.anne
Your father has a lot of questions that he needs to discuss with the urologist concerning his self catheterization schedule . He should probably make an appointment to do this sooner rather than later

To answer your question about the BCG, his bladder needs to be completely healed from the surgical removal of the tumors so a six week would not be unusual.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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1 year 4 months ago #57479 by megepj

My dad, who just turned 86, had TURBT two weeks ago. The doctor called him Friday to tell him he would need BCG treatment for six weeks. I don't have a pathology report, but I know it was a high-grade papillary tumor. When he called to make his appointments, they told him he would start July 17th! That seems way to long to wait to start the treatments - I am concerned he would have more cancer by then, and they aren't even planning to check before starting. Since I am new to researching this, I am hoping someone can let me know if waiting three months to start is ever normal. The most I read while researching is three to six weeks. They offered he could call back to see if there is a cancellation - who would cancel cancer treatment?

My dad has two extremely large diverticuli, making his bladder hold over twice the volume of a normal bladder. I am not sure how they even did staging as his tumor was located in a diverticuli. I am happy to say they did get clean margins. I wonder why the set up treatment, but didn't offer him a chance to talk to his doctor about the amount of BCG used and if that would be adjusted for him. Also, my dad does self-catheterization due to prostate issues, and urine backing up (causes his kidney's to be inflamed). He needs to do this six times a day. It would be nice if they wanted to talk to him about how he handles this before starting. I am sure the doctor won't be there for his first treatment.

Again, thank you for reading this, and I look forward to some answers about when others started there BCG . I live in Michigan, and so does he, but he saw a urologist in St. Louis while visiting my sister. I would be happy to have him stay here and go to the University of Michigan for treatment, but don't know how easy it would be to get him started here.

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