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Husband just diagnosed, would appreciate advice

1 year 5 months ago #57318 by sara.anne
I second Alan's welcome. And many partners post here.

There is good news and not quite so good news with your husband's diagnosis. 0is means that the bladder cancer has been found at the earliest possible point, and the "is" indicates that it is what is called "carcinoma in situ" or "CIS" which is high grade. As you may have read, BCG is the treatment of choice for CIS. Mitomycin is also sometimes used, particularly if the patient is unable to handle BCG for some reason or if, as has been happening recently, BCG is not available. BCG is a wonderful treatment to have available for CIS as it is often curative. I was diagnosed 11 years ago with CIS, underwent BCG induction treatments and then maintenance treatments and am (anxiously) awaiting my 11th year exam (and all clear?) in about two weeks. Your husband will, we trust, have the same result!

BCG is a live, if modified, TB bacterium that was developed almost 100 years ago as a vaccine for children. Of course some caution is always indicated with its use. Your husband, should his doctor prescribe it, will receive complete instructions about how to deal with it. He should discuss your pregnancy with his urologist and you should definitely discuss the situation with your OB. I suspect that part of their advice would be for him to use a separate bathroom, if possible, and take care of his own disinfection issues with you staying away from it. As Alan said, individual medical advice needs to come from your doctors since they are familiar with your situation and we are not doctors. Just be sure to make a list of all the questions you might have and be sure to ask them and get answers that you are satisfied with.

I am sure that he, and you, and your little one will do fine.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 5 months ago - 1 year 5 months ago #57317 by Alan
Welcome. It is always good to have a spouse involved in any health issue! Pat yourself on the back.

It is good obviously that the stage is early. You didn't mention the grade. If it is low grade the normal protocol is simply waiting and observing every 3 months with scopes graduating to 6 months after a couple of years and then to yearly. As you asked about BCG I am assuming it is high grade and that is normally treated with immunotherapy which is BCG. As it is a bacterium compound caution is in order. I was advised no unprotected intercourse during the 6 weeks I was taking this and probably safe 10-14 days after finishing the course and to bleach the toilet bowl for several/6 hours after it was voided. Of course clean hands! Being pregnant could pose more questions that I would ask the doctor as none of us are doctors just those that have been there and done that. Problems are rare and as my doc said if it was that dangerous he would not allow his staff to handle it. Caution is the word.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 5 months ago #57316 by sbc424
Hello, I'm new here. I hope it's okay that I'm posting as the partner, not the person diagnosed. Today my husband got the diagnosis of Stage 0is. He is 45 and didn't have any of the risk factors I've read about.

For others with Stage 0is, I am wondering if you'd be willing to share what your treatment was, please? Did your doctor recommend Mitomycin C or BCG in addition to TURBT?

Also, I am pregnant and wondering if anyone is familiar with precautions after receiving chemo or immunotherapy to protect family members. I'm probably getting ahead of myself here...

Thank you in advance to anyone willing to listen or share. I'd also appreciate any thoughts on how I can be the best partner possible right now to my husband who is processing all this.

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