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I've just become a Cancer Warrior

1 year 5 months ago #57515 by Warrior1968
Latest news. Doc wants me to undergo six weeks of mitomycin. Then check after three months. Any body know what mitomycin is?
The nurse litterally just refered to it as "The medicine we use". Im wondering because what im reading suggests its a form of chemotherapy.

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1 year 6 months ago #57461 by Alan

You are welcome to rant, opine, whatever is needed here. We will try and listen. Not defending anyone in your family except sometimes they don't want to accept you have cancer or they simply don't know what to say. It is sometimes harder being a caregiver! You are strong!

The good news is you have a plan and you will come out of this forest stronger AND more effective in your life!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 6 months ago #57459 by sara.anne
Just a quick word in defense of your doctor , Warrior. When mitomycin is used in this way it really is not being used as a chemotherapeutic agent. Its purpose is the same as BCG. That is to stimulate your immune system to reject the cancer cells in the bladder. Since there is currently a shortage and BCG is hard to obtain, your urologist is using mitomycin in the same way, as an immune system stimulant, NOT as a chemo agent. It will be instilled into your bladder directly. You may have some side effects but it will be nothing compared to receiving chemo.

And remember...you do have friends and support here,

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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1 year 6 months ago - 1 year 6 months ago #57458 by Warrior1968
Jack, Thanks for the reply. I fully understand what your saying. Unfortunately that doesn't apply in this case/current situation. The people that ignore this problem I have are my own older brother and the mother of my child who heads a cancer support group. They truly could care less. It's quite disturbing.
As for the necrotic tissue, I'm not sure what you mean. The doc wants to have me have mitomycin treatments every week for six weeks. They didn't even tell me it's a form of chemo. I had to find that out on my own.
I'm pretty much tired of these completely incompetent people in my life.
They really do not care and it's obvious.

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1 year 6 months ago #57457 by Jack R

A cancer diagnosis is a funny thing. A lot of people, maybe most, seem clueless in dealing with a current friend, associate or relative who is diagnosed. Cancer is a scary thing - Cancer is a word no one wants to hear.

People around yo have no idea if you are minimally impacted or perhaps going to die tomorrow. No one wants to say anything that might upset you. So they may move away just a bit, giving you however space you might need.

You may need to take the lead in reestablishing normal interpersonal relationships. Casually restore the prior norm "lets grab coffee on Wednesday", or "golf on Saturday" - whatever is the norm. Let people see that you are still you. Dissolve any mystery, briefly explain as seems right, get back on track.

Cancer can be the BIG elephant in the room. Tame the beast.

Have plans been made to deal with the necrotic bladder tissue, or is it a "wait and watch" issue?

As Bob Dylan reminded us, "It's life ma, just that".
Make it the best it can be.


What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back...

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1 year 6 months ago #57445 by Warrior1968
Got my 2nd biopsy results back.
No malignancy in the propia tissue. However, there was dead tissue that is suspected non viable tumor. Hmmmm? I wonder if that is due to all that colloidal silver I drank for the five weeks between surgeries? LOL, Nudge nudge wink wink! I'll never know.
My treatment suggested by the doc is mitomycin once a week for six weeks.
Uhgg! I'm not real interested in having a catheter shoved up my urethra every week.
I'm one of those people that it takes longer to heal. I'm two weeks out of my last turbt and p still burns and my prostate seems to hurt a bit. Not feeling good about it at all.
Actually quite depressed. Family members don't even ask how my biopsy went. Maybe I'm just feeling sorry for myself, but it's dissapointing when your closest people in your life act like they don't care.
Im looking for a therapist, but i have been looking for over a year and not getting any help. That's pretty depressing too.

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