Recurrent high grade bladder cancer

Sara Anne I’m a nurse and also a cancer patient myself (not bladder cancer).

I know that they stain these cells very specifically and that the identification here in a cytology wash sample is no different than using pathology to identify a cancer. They are using the same techniques.

I believe the false positives are when they are calling cells suspicious or something along those lines. Not a definitive diagnosis of what the cell actually is.

Jack I truly appreciate your response. We are actively looking now for the best doctor possible. Many thanks.

Busymom123

While you describe a strange set of circumstances that cannot provide any sort of conclusion, one possible answer to your question comes to mind.

Cytology - examining urine for cancer cells is not specific to the bladder. Cancer cells from the ureters and renal pelvis (kidneys), if any cancer IS there, will also be found. Upper urinary tract cancer can produce a properly positive finding of cancer by cytology, yet there may be NO cancer in the bladder (at least) at the present time.

It may well be time for a fresh opinion from a trusted provider with no prior baggage. Try a university medical school, or consider any of the NIH-NIC Designated Cancer Centers. link to the list is below.

www.cancer.gov/research/nci-role/cancer-centers/find

Best,
Jack

Thank you for the reply.

Is this true of cytology even if the result is very specific?? I’ve attached part of the report

Hello. I am new here. My dad has just gone through a pretty bad experience. He had high grade bladder cancer 15 years ago and was treated. In November he started having blood in his urine so he went back to the urologist that treated him.

The doc did a wash that showed high grade once again. This doctor never called and informed my mother and father. They found out when the cytology report showed in the patient online chart for our hospital system. The report was positive in just over 24 hours and yet even with call after call this urologist never called my dad for 12 days and when he did he did not move up his already scheduled surgery (they thought would be a TURP).

Today before his surgery this doc comes to the pre-op area and tells my dad and the rest of the family he had cancer 4 years ago and that my father was told this and my father never followed up. This could not be further from the truth.

I could go on and on. Nightmare.

My question is after today’s surgery he comes out and says that my father did not have cancer 4 years ago after all. He also tells us that even though the cytology positively showed high grade recurrent cancer my father does NOT in fact have cancer now because there was no tumor found in today’s surgery.

This is a total terrifying nightmare for all of us.

Is this possible? That the wash showed cancer cells but he does not have cancer??

Please help us know what the best thing to do next is.

Thank you