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Indiana Pouch or Ileal Conduit?

1 year 6 months ago #56967 by Cynthia
I have had a Indiana Pouch since 2006. It has served me well and I find it has not changed my life to a great extent. Nothing is perfect in life there are prosand cons to all the diversions it really depends on your personal situation. I also had spread to the ureathea so a neobladder was not possible and I wished for a continent diversion. Please feel free to ask me questions and I will do my best to answer them.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
The following user(s) said Thank You: darla922

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1 year 6 months ago #56959 by Jack R

Until another user responds directly, you can review the many past discussions on the subject of choosing a diversion- I found review other peoples discussions very helpful, perhaps you will also.

Click on SEARCH in the top menu bar, and use search terms such as "diversions" or "Indiana" or "Ileal" etc. No quote marks, one term at a time or in combination. You will find lots of helpful information. I have picked a choice, but have not gone there yet.


What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back...

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1 year 7 months ago #56946 by darla922
Have had bladder cancer twice in two years and now since it has gone to my urethra, recommendations are to remove bladder....I need to make a decision as to which option I would want to get...Indiana Pouch or Ileal Conduit....both are foreign to me and they both have their pros and cons.....any recommendations from people who have experience in either...thanks

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