WOJOS,
I agree with Jack, that until the tests are complete, and the results are in ( and sometimes even then) spending too much energy on what ifs are unhelpful. A little over a year ago, I stumbled across a book titled “The unteathered soul”. I’m in the sales business, and was looking for books on mindset and ended up on this title which is about mindfulness. Curious about what mindfulness once I Purchased the book and begin reading. It has changed my life, and the lives of several around me. In a nutshell, and in a way that this book is masterful at explaining, mindfulness is about living in the now. Doing so frees you from the pain and agony of living in the past which cannot be changed, for the future that is not here and may not arrive. I highly recommend a book, and I actually believe the audible version might be more impactful than their written version. I’ve went through both.
So, armed with the prospect of mindfulness, I did spend a lot of time researching bladder cancer. I did it in a detached manner, Like any other research project I might undertake, without forecasting any particular experience that I may or may not actually experience. Mindfulness,keeps me calm and whole. The research allowed me to follow along in the tests, and conversations without asking some questions ( because I really did understand) and asking detailed, 2 and 3 level deep questions in other areas.
If you can live in the moment - you might similarly benefit from taking this on as a research project. If it gets to you, I would look for someone to study and advocate for you, or just wait it out. I can say for sure, there is no benefit owning an outcome that isn’t here now.