My name is Chris and i’m a 37 year old man living in Sweden. This is my story so far.
It began late october last year when i, to my surprise, noticed blood in my morning urine. No question about it, the last drops were dark red. It also contained blood clots.
I went to the local healthcare unit where i live and they figured that i had a UTI but still booked me an appointment with an urology specialist since there was high levels of blood in my urine. They also gave me broad spectrum antibiotics, still certain that it was a UTI.
A week later they contacted me and said i could stop taking the antibiotics since the tests had shown no sign of a UTI.
The next week i had an appointment with the urologist where they made a cystoscopy and found nothing.
I was sent to make a CAT scan of my kidneys that didnt reveal anything.
So everything seemed fine. The blood was gone and they said to return if the problems did.
A couple of days before Christmas the blood was back and again i went to the local clinic and again they said UTI and gave me more antibiotics. I had them again and everything seemed fine. The blood disappeared the first day.
Now two weeks ago the blood returned and today i was at the urologist again for my second cystoscopy where they actually found some redness and they took some kind of sample to send for evaluation.
Now, i’m feeling worried and i just want to know if any of you guys recognize my story? I feel that the doctors are very secretive and don’t want to say too much and when i just Google around i feel as if the worst things are coming my way.
Welcome. Based on what you have posted, the chances are good that you don't have bladder cancer. The cystoscopy and CT scan are the 2 most useful and important tests on diagnosing it. With neither showing anything it is probably something else. It will be interesting what your second scope will reveal and that should give you more peace of mind assuming nothing is found. Sometimes a reason for passing blood is never found. It could be irritation passing stones, an exotic UTI, among many other possibilities. In the event is ends up as bladder cancer it is treatable and beatable by the majority of us. So, take one day at time and do not rely too much on the often misleading, contradictory and confusing google/searches.
Keep posting as you have questions!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Thank you so much Alan, i really appreciate your answer.
I feel that i'm in a bit of an information vacuum and just surfing the web for my symptoms is stressing me out.
I'm reading my journal right now online, and i see that they have further plans for me. They are doing PSA measurement, an ultrasound of the prostate and also planning to take tissue samples from a cystoscopy furter ahead.
One thing i forgot to mention in my initial post is that i have started to go to the bathroom more often, and at nights even which i never did before. Also, on two ocasions i have noticed cemen seeping with my urine (right after).
Also, i have been feeling very tired lately, even after a good nights sleep (8+ hours).