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Indiana pouch

1 year 11 months ago #56536 by lotech35

I have to say after 6 months with the Indian pouche I felt better with my choice. Still odd to look at the stoma but not terrifying. I hear about the people that chose a neobladder and how at night they are incontinent also how they need to empty so frequently! I can go 5hrs or more depending on fluid intake. the big seller was the ability to be continent at all times with out a big learning curve.

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial....

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1 year 11 months ago #56527 by Cynthia
I have had my Indiana since 2006 and have never regretted my choice. It takes some time to train it after surgery but once that is done it has worked well for me. After a few months I can honestly say it was my new normal. If you have specific questions please let me know and I will do the best I can to answer them.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
The following user(s) said Thank You: lotech35

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1 year 11 months ago #56505 by Baubbie2266
I was given 2 options. The outer bag or the Indiana. I choose the Indiana but need to know how long it took to get to the stage of feeling comfortable that you made the right decision or do you wish you had gone the other route. Thank you for any input you can give me. Also is there anybody out there that chose the Indiana but woke up to being bagged because of complications?

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