Post TURBT meeting w. urologist: appropriate questions

2 years 5 months ago #56293 by Knifedealer
Hello again. It's been 10 days since TURBT and I feel great other than pain, primarily burning, during urination. I told my wife it feels like I'm peeing napalm.

As I was being prepared for TURBT surgery, a number of questions arose about the procedure that I wish I had asked my urologist weeks prior. I realized then that I didn't know what questions to ask until it was too late (e.g., so doc, how many times have you actually performed a TURBT?). I don't want to make the same mistake when I see him this week to discuss the pathology report which I assume will reveal stage, grade, and treatment options and recommendations.

So I'm asking you ... is this (see bold) what I should expect during the first meeting with uro after TURBT and what questions are "must asks" at this time?

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2 years 5 months ago #56295 by Alan
I will answer in general terms as you doc's answers are normally cut and dried (routine) to your questions. First let's hope is not even BC! If your grade is low, and stage 0 or 1, you have the best of all DX. You will probably be set up on every 3 month scopes for up two years, then every 6 months or 2 more then yearly (commonly called "watching and waiting"). If it is high grade and stage 0 or 1, often a second TURB is common just to safe the staging is correct. Then BCG as immunotherapy is a common response to treat. Also add the same response on scope schedules. If any of tests show stage 2 or worse, that usually means a cystectomy as not doing this will decrease surviving goes down dramatically.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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2 years 5 months ago #56310 by Knifedealer
Met with urologist this morning to review pathology report and was told that both tumors were diagnosed as low grade papillary urothelial carcinomas that were both negative for lamina propria and muscularis propria invasion.

Other than the growths not being cancerous at all, I think this is the best I could ask for as Alan indicated.

He want to see me in 3 month for a cystoscopy. Meanwhile the dysuria has subsided considerably and the anxiety is gone completely.

In my case, I was lucky that the tumor was found early. I had no blood in my urine, no pain during urination or pelvic pain. The tumors were a surprise, identified during a cystoscopy that was done to determine the extent to which my moderately enlarged prostate was constricting my urethrea.

Thanks for your kind words and support. I will continue to check in from time to time. Best of luck to all.

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2 years 5 months ago #56311 by sara.anne
That is really GREAT news!!!

Just be sure to keep those urology appointments over the next few years!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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2 years 5 months ago #56312 by Alan
Good deal! Happy for ya!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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2 years 5 months ago #56314 by Finalman2
Brilliant news Knife, I hope all goes well for you!

28/10/18 - Blood???
24/12/18 - Dx TaG2
15/01/19 - Start BCG
06/04/19 - Cysto + Biopsies - CANCER CLEAR
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