Alan, that is so true. I make notes and bring my questions with me at every visit yet still he manages to leave me with questions . The way I look at is he knows what he's talking about and obviously thinks everyone else's is on the same page. Not so!
Guess I just don't understand what he means. IF he sees anything, meaning that there still is cancer there, I would think he would do another TURB and resume BCG. If he doesn't see anything (which is what usually occurs) then he would continue with maintenance BCG.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
1 year 7 months ago - 1 year 7 months ago#56181by Alan
I am adding but, not contradicting Sara Anne's info. Something past the induction 6 is almost always done. There is a very respected Dr. Herr (now retired from either John Hopkins or Sloan Kettering) some 10 years ago that used just 6. My personal URO (who studied under Dr. Lamm many years ago) had me do 6, 6 weeks off then just another 6. I am adding that he may have simply personalized my situation as while my tumor was high grade it was small, stage TO. His reasoning is every procedure that is invasive (cysto, BCG etc) all carry small but, real potential for problems. The cystos done for a year showed nothing so we never did anymore BCG. My gut feeling is something after 6 is good and Sara Anne's protocol is proven to be good. IF, sensitivity were to increase one can always cut back the number of strength which often happens. Be sure your husband listens to his body/bladder and make sure those scopes are followed!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.