Thanks Jim! It's a whole bunch of information overload. Yes, they are affiliated with Dana Farber. Right now going thru motions with Lahey, and feel a bit terrible for exercising Drs I know I probably won't end up using, but I'm sure they know how this all goes. Heading into B&W on 11/27.
It is just all so new, so unexpected - and down right scary.
I'm coastal North Shore and have been taking a deep breathe with every sunrise, cloudy or not!
1 year 10 months ago - 1 year 10 months ago#56174by JIMG4
so sorry to hear of your diagnosis. I was just diagnosed with the best possible news as it relates to bladder cancer (Ta non-invasive papillary TCC) so I have not been dealing with the issues that you are. Im no doctor,
however, I've heard good things about Brigham & Womens. And it looks like Alan is confirming the same in his reply! I would think you are in good hands as they are affiliated with Dana Farber I believe.
Like you I live North of Boston, right in the MA/NH line. We are fortunate to have the medical resources that we have readily available to us and not having to travel cross country or several hours to get to qualified care.
1 year 10 months ago - 1 year 10 months ago#56171by Alan
Welcome. I simply wanted acknowledge that someone sees your post as sometimes it will take a day or two! And, please don't freak out as all of us are survivors, there IS hope!
First, what I remember from other people's posts the Brigham & Young Women's hospital should have you in good hands. I am sure someone else will also respond on this as I am in Texas and not that familiar beyond that. Second, I have not had to have a cystectomy but many here have and am sure others will chime in. While it is a very serious surgery T2 staging gives you a real good chance of ridding all of this cancer. I am bookmarking (our hyperlink I notice doesn't activate so copy and paste) a very good site with the 3 different diversions done. It will get you up to speed: https://my.clevelandclinic.org/health/treatments/12546-urinary-reconstruction--diversion .
Beyond that, ask away with other questions as you go. I am also glad you are quitting smoking as it has been one of the causes for about 60% of bladder cancers. Perhaps the best advice I can give is take one day at a time as that is all we can really control. This is treatable and beatable!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Last edit: 1 year 10 months ago by Alan.
The following user(s) said Thank You: JIMG4, CoraBell