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Surprised at test results - unsure what to think or expect

2 years 3 months ago #55926 by Cynthia
Sorry you have to be here. It is hard to say what you are dealing with without a biopsy and pathology report to go by. And yes urine cytology does have a certain percentage of false positives and negatives. If your questions are not being answered by your current Urologist you might think about getting a second opinion with a Urologist that handles a high volume of bladder cancer.
Please keep us updated.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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2 years 3 months ago #55891 by sciona
So, I apologize for posting here. I'm not technically diagnosed with bladder cancer. But this past week has been a whirlwind and I'm just still in shock from what's happening.

I'm a 32 year old woman. I was referred to a urologist for blood in my urine (microscopic). Every step of the way, I expected to be told it was a fluke or it was something else.

Yesterday I had my cystoscopy done. Lo and behold, there's two spots/tiny tumors in my bladder.

The doctor cauterizes them right there immediately and has the nurse order cytology on my urine sample.

I've heard cytology isn't that reliable. Should I be nervous because he didn't take a biopsy? I'm going back in 6 months even if the cytology is negative just to make sure nothing grew back. I'm just at a loss. I totally didn't expect something like this.

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