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How long did you wait for diagnosis

2 years 3 weeks ago #55611 by Brooke
Thanks so much for your kind words and response Alan! I’m surprised to see in other peoples’ accounts that things move so slowly but I guess that’s standard. I’ll work on my patience and wait for what’s to come. Thanks again!


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2 years 3 weeks ago - 2 years 3 weeks ago #55609 by Alan

Welcome, just sorry why you are here. A week is pretty quick. Sounds like the ER saw something that you want to handle fairly quickly. If it was a UTI possibly with blood normally you would do antibiotics first to rule that out. On to your specifics. The cystoscopy is one of two primary diagnostic tests. The other is usually a CT scan to be sure the rest of the urinary tract has no issues. Both together give a good picture and 2, 3 even 4 weeks is not too long. Yes, the waiting is no fun. However, tumors do not grow that fast. IF either show a need for a biopsy called a TURB (transurethral resection of the bladder) that is usually done fairly quickly as a day surgery under light sedation to cut/burn any tumors and have samples to biopsy. You really will know NOTHING important (if needed) unless you get to this stage.Take one day at a time. Keep us posted as you go and let's trust this is nothing at such time we will cheer you outta here!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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2 years 3 weeks ago #55608 by Brooke
I’m 38 and being referred to a urologist for suspected bladder tumor by the ER. How long should I expect to wait for the various appointments? ER doc said urologist will fit me in within a week. Should I expect to wait weeks or months before finding out type and stage? Thank you!

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