I had my surgery for cystectomy & neo bladder 5 weeks ago & get the foley out tomorrow. May I ask...why is it harder for women? I too want to hear more stories from women living with neo bladders. It seemed that they were all men under that topic on this forum. I am mostly anxious to know how long I may be looking at being incontinent and when in the world I'll get my appetite back! I was only 105 before surgery and now 94. I cannot afford to keep losing and am drinking lots of the supplement drinks.
Would love to hear from women living with neo.
DX:11.2017, TURBT 11.2017 and 12.2017 to determine stage. (1) Papillary HG. BCG - 6 rounds 2.2018. BC clear 3.2018. BCG- 3 weeks 5.2018. Reoccurrence & TURBT 6.2018. (4) papillary HG & (1) CIS tumor. Cystectomy August 15, 2018 (Neo Bladder) Incontinent /fistula-so had urinary diversion to...
Hello. I had my bladder removed last July 2017. I was given the option only for a ileostomy conduit (stoma)/urostomy bag. I am consulting with a urologist tomorrow to discuss converting to a neobladder. Any women in here that have had a neobladder? Pros/cons? Thank you!
Newly diagnosed with stage 2 high grade bladder cancer. I’m an active 65 yr woman. Thinking of neobladder and would like to hear more experiences from women with neobladder. Recommendations for surgeons in San Francisco Bay Area? UCSF? Stanford? Both about the same?
Please read my reply to ICStinks (right below your post) if you haven't. You mention that you are being seen by two "specialists"but didn't mention who they are or where they are. I am surprised that two "specialists" would recommend a neobladder for you.
That being said, we are not really familiar with IC here, as our focus is bladder cancer. You might find better answers to your questions at a site that specializes in IC such as
Wishing you the best
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society