Hi Sara-
I had my surgery for cystectomy & neo bladder 5 weeks ago & get the foley out tomorrow. May I ask...why is it harder for women? I too want to hear more stories from women living with neo bladders. It seemed that they were all men under that topic on this forum. I am mostly anxious to know how long I may be looking at being incontinent and when in the world I'll get my appetite back! I was only 105 before surgery and now 94. I cannot afford to keep losing and am drinking lots of the supplement drinks.
Would love to hear from women living with neo.
DX:11.2017, TURBT 11.2017 and 12.2017 to determine stage. (1) Papillary HG. BCG - 6 rounds 2.2018. BC clear 3.2018. BCG- 3 weeks 5.2018. Reoccurrence & TURBT 6.2018. (4) papillary HG & (1) CIS tumor. Cystectomy August 15, 2018 (Neo Bladder) Incontinent /fistula-so had urinary diversion to...