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Muscle invasive adenocarcinoma of the bladder

2 years 8 months ago - 2 years 8 months ago #54943 by CatherineH
Hello and welcome to the forum. I also had a primary adenocarcinoma of the bladder in 2010. My experience was different than yours in that mine was located in the dome. I was fortunate to be a good candidate for a partial cysectomy due to location and smaller size of the tumor. It is very good that you have done some research to better understand your diagnosis and asked for a second pathology review. I was also very frustrated at the time by the lack of information out there when I was first diagnosed.

Sounds like you have excellent medical options available in your area. As Sara Anne said, a second opinion of your case and treatment plan may help you feel more confident in the path you decide on. It is important to have a very experienced surgeon and speak up to get your questions answered and concerns addressed. If the final treatment decision is to have a radical cystectomy, there is a lot of experience here to answer those pre and post surgery questions. I’m sorry I can’t be more helpful.

Best wishes... Catherine
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TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
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2 years 8 months ago #54942 by sara.anne
Since this is a relatively rare type of bladder cancer, there are not many "fellow travelers" who have it. You are doing absolutely right in getting a second opinion on the pathology. Since this is a relatively unusual diagnosis you may also want to get a second opinion on options for treatment. If you are in the Bay area, Stanford has a world-reknown urology department with lots of expertise in bladder cancer.

Best to you

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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2 years 8 months ago #54941 by cmooresailors
I'm sorry here in the same boat. I'm also encouraged and hopeful to see so many who are recovering and in remission. I'm a 41 year old stay at home mom / wife I was just diagnosed on the 14th of March with muscle invasive adenocarcinoma of my bladder. I'm in the process of getting on with the many referrals that are necessary to determine the origins of the adenocarcinoma as well as actual staging of it. I've also requested for a second pathology to be performed on samples at UCSF where all my referrals are being sent . From what I've read it seems like it's a foregone conclusion that because this cancer occurred in the trigone of my bladder as well as urinary tract I'm most likely going to lose my entire bladder and urinary tract. If there's anyone else who has had a battle with this type of cancer in this area and they have any information to share about their experience or advice I am more than open to it and would really appreciate it. There's just not much literature on it due to it being a very uncommon cancer in the bladder.

Muscle invasive adenocarcinoma of the bladder
Diagnosed 3/14/2018
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