In situ carcinoma

2 years 10 months ago #56106 by arpegio2018
Replied by arpegio2018 on topic In situ carcinoma
I strongly recommend that you read and try to absorb the Consensus Statement on Immunotherapy for Bladder Cancer. This will explain almost all that matters

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2 years 10 months ago #56104 by sara.anne
Replied by sara.anne on topic In situ carcinoma
Not all urologists follow the same protocol with BCG administration. The one I had is perhaps the most common because it has been shown to be effective, particularly with CIS (Carcinoma in Situ). It consists of a 6 week induction period with BCG once a week. Then several months off and a cystoscopy check. If all looks good, the BCG maintenance begins...once a week for three weeks every three months for two years. There are other protocols used, including one that uses BCG once a month sort of forever.

Here is a good reference (there are many) that discusses this

www.nature.com/articles/nrurol.2015.58

CIS is not something to fool around with. I would discuss this with your urologist.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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2 years 10 months ago #56103 by Vh9246
Replied by Vh9246 on topic In situ carcinoma
The doctor did mention he would watch him for two years then once a yr after that. He has never mentioned maintence . Could this be what he means for those two years? If do what does the maintence consist of ?

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2 years 10 months ago #56098 by sara.anne
Replied by sara.anne on topic In situ carcinoma
Keep in mind that we are very lucky to have BCG . While it doesn’t work in every case, for many patients it is a very effective treatment and has saved many lives.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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2 years 10 months ago #56096 by Vh9246
Replied by Vh9246 on topic In situ carcinoma
Your comment has jut put my mind at ease. My husband as well in situ carsinoma . He does get fatigued .He had his 5 th treatment today . He's tolerated it well but today he had a little bleeding. Which unnerved me but I know it's a side effect. I did see in the bowl some tiny either piece of skin or scab before the bleeding started. I know that is normal too. I just can't wait for this poor man to be done with this. Thank you for the post it helped my mind set.

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3 years 4 months ago #55283 by arpegio2018
Replied by arpegio2018 on topic In situ carcinoma
Thank you very much. This helps me a lot.

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