Newly diagnosed. Very scared! I have a Turbt scheduled for Monday 6/5

My doctor had planned to do the chemo wash during my blue light cystoscopy but he could not because once he got in there because the cancer was too deep. He explained that when they cut so deep, the chemo can seep out of the bladder into the rest of the body so we need to wait tolet the bladder heal first. I go back to the urologist tomorrow to have the stent removed and to get the next plan of action,

Thank you Jack for all the info! The waiting is really a difficult thing to endure but I've read so many strong stories on here already.

John

John,

It seems that you, like many (most?) of us, are given very little information when the time the doctor first says "Looks like you have bladder cancer". Truly, the doctor won't know much for sure until the pathology report and other test reports are in. But, as patients, we need to know more - otherwise we can worry ourselves sick if sent home with the word "cancer" and nothing more..

Below is a National Cancer Institute website that covers the full range of bladder cancers and treatment choices. Calling the tumor "cauliflower" is a good thing - it suggest a good chance that you have a low grade of cancer and that there are good treatment options. That website may raise questions for you to ask the doctor about your care, or help you understand what the doc says to you.

Too many of us are simply told "you have cancer" and we are left to think the worst. Think positive - you have received good advice so far, and will have the solid answers you need soon. Feel free to post any questions to the forum.

www.cancer.gov/types/bladder

Best,
Jack

Thank you so much Cynthia. I am of course very afraid but I've been reading all the support on this site and I am very glad I found this forum to reach out to. I will definitely keep everyone updated.