radical cystecomy

Hi Razor, sorry to hear of the trouble. I wish Mitomycin, works and you find good suggestions here..Good luck!!

Radar it is always best to think one step ahead of blc if you never need the info there is still compfort in having a battle plan. There are several world class guys that I have in my short list in the this country, it would depend on where you are or if you are willing to travel.

Radar it is always best to think one step ahead of blc if you never need the info there is still compfort in having a battle plan. There are several world class guys that I have in my short list in the this country, it would depend on where you are or if you are willing to travel.

Razor,

Sorry you have to face what is going on but, welcome. First, let's hope mitomycin works!

If it comes to a cystectomy you want a practice that does a LOT of these. 50+ a year. Too many see mostly prostatic cancers. A big teaching hospital or group that has a specialty in bladder cancer like MD Anderson as an example.

Also, I am linking a bookmark that many of us have used on the 3 main diversions to plan ahead. I am not sure our hyperlinks are working so copy and paste: https://my.clevelandclinic.org/health/articles/urinary-reconstruction-and-diversion

Good luck as post with any questions.

The three rounds of BCG treatments have not worked and so we will try a course of Mitomycin. If this also fails I am looking at a radical cystecomy. I would appreciate any comments as to what I should know and what I should expect. Where is the best place to go for this procedure and who are the best doctors. I am 73 and have an active sex life. I would want every attempt to avoid damage to critical nerves. Thank you.